It is clear that much more research is needed into thyroid disorders of all kinds. This page provides details of opportunities for patients to contribute to current research projects and links to further information.
Visit our Research References page for links to published research studies which may be of interest.
British Thyroid Foundation and Sheffield Hallam University Study on Hypothyroidism
Researcher, Joe Straw, is looking at the impact of hypothyroidism on quality of life. If you have congenital or acquired hypothyroidism, blood test results within the reference range (defined as euthyroid) and are treated with levothyroxine (only), you are invited to complete this survey.
Thyroid Patients and Social Media
PHD student, Judith Schossboek, is researching the use of social media by thyroid patient individuals and groups. If you'd to help add to her knowledge she is conducting interviews. Click here for full information on her research.
Patients Association survey informing NHS England
Have you been denied treatment on the basis of cost, or a ‘CCG decision’? Complete the Patients Association survey and share your experiences with them. Your views will help inform their response to NHS England. It will take around 10 mins to complete. Liothyronine (L-T3) for hypothyroidism is one of the treatments being looked at. More info: https://bit.ly/2LfLtgR
NHS England review of 2017 consultation on "items which should not be routinely prescribed in primary care"
you can also respond directly to NHS England consultation, and attend meetings on the review of the 2017 consultation: Items which should not routinely be prescribed in primary care. To find out more and take part in the update and consultation on further guidance for CCGs click here.
(we would encourage you to both if you have the energy)
Graves Disease clinical trials
Survey for anyone treated for thyroid cancer
The American Thyroid Association (ATA) is collecting information and opinions from patients about their experience with thyroid cancer to better inform medical providers about how patients experience the challenge of thyroid cancer diagnosis and treatment. ATA encourages anyone with a history of thyroid cancer to take this survey. Feel free to disseminate this survey link broadly, and encourage others to take the survey. ATA also encourages all thyroid healthcare professionals to share this survey with their patients.
Survey results will be compiled and discussed by thyroid leaders at the American Thyroid Association Satellite Symposium: The Spectrum of Thyroid Cancer, from Surveillance to Systemic Therapy on Friday, March 16, 2018 at McCormick Place West in Chicago, IL. Subsequently, survey results will be posted online with free access to the public as well as made available through publication.
Your responses are anonymous and should only take a few minutes to complete.
The survey is intended for anyone with thyroid cancer - it is not limited to North America. If you are not in the USA, just enter the name of your country in the “ZIP code” field.
Cancer Research UK provide more information about thyroid cancer, including details of current research studies, here.
for everyone affected by thyroid disease
We organise regular information and support meetings in London click here for upcoming dates.
please click here to get in touch or subscribe to our contacts list
71-75 Shelton Street, London, WC2H 9JQ