You're not alone with thyroid disease
The Thyroid Trust (TTT) is led by patients;
working closely with leading medics, health
specialists and research.
Providing reliable information, representation and peer support.
working closely with leading medics, health
specialists and research.
Providing reliable information, representation and peer support.
Why we are ‘Sharing Our Stories’
One of the most powerful things we do as a community is talk honestly about what
life with thyroid disease is really like.
When we share our stories - the confusing symptoms, the setbacks, the things that
help us - we remind each other that we’re not alone.
We don’t shy away from the difficulties and frustrations, or the long waits for
answers. Yet through our stories, we offer hope, reassurance, and the kind of insight
that only lived experience can bring.
💬 Why Stories Matter
When stories are shared, empathy grows - and that benefits us all.
For you: writing can be cathartic, reassuring, and therapeutic. It helps you process
what you have been through, and still are going through, however well you
manage your condition.
For others: your story can be the moment someone feels seen and understood.
Together, we form a collective voice raising awareness — and compassion.
🦋 We welcome stories from:
Adults (18+) living with thyroid disease
People recently diagnosed or long‑term patients
Family members, partners, friends, or colleagues
You don’t need to be a “writer.” Honest, everyday experiences matter most.
💜 ✍️ Format & Submission
Written stories (300–1,500 words)
Short reflections, poems or letters - to yourself, to others.....
...or the one you wish you had received
🔒 Privacy & Consent
You choose how you are identified: full name, first name only, pseudonym, or
anonymous
Stories are edited collaboratively, with care and respect
This project shares lived experience, not medical advice
How to Submit
Send your story to [email protected] with the subject line:
Sharing Our Thyroid Stories
Share as little or as much as feels right for you.
Every perspective matters.
🪶 By submitting, you agree that:
Your story may be used by The Thyroid Trust on their website, in publications, or
promotional materials
You remain the author and retain ownership
You can choose anonymity or use a pseudonym
You will not receive payment for publication
You may withdraw consent at any time (previously published uses remain in place)
🌷 Why Your Story Matters
Many people with thyroid disease feel dismissed, misunderstood, or alone - especially
at diagnosis.
Your story could be the one that reassures someone that what they’re experiencing is
real and that they aren’t failing or imagining it.
“Sharing our stories helps us feel less alone - and lets others know that they are
not alone either. Thank you for sharing a piece of your journey.”
💡 Optional Story Prompts
Getting Started
What first made you realise something was wrong?
How did you receive your diagnosis?
What does “living with thyroid disease” mean to you?
🌈 Exploring Your Experience
What has surprised you most — good or bad?
How has thyroid disease affected your day‑to‑day life or relationships?
Have you found unexpected strength or joy?
What do you wish you’d known earlier?
🌻 Connecting & Supporting
What would you tell someone newly diagnosed?
Are there myths or misconceptions you’d like to challenge?
How has connecting (or wanting to connect) with others helped you?
What is your main message of hope or realism?
🌿 Reflecting & Looking Forward
How has this journey shaped who you are?
What tools, strategies, or support have helped?
If you could speak to yourself at the start, what would you say?
What are your hopes for the future — health or otherwise?
You can write in any style: paragraphs, poetry, bullet points, letters, or just 'moments'.
All emotions are valid: humour, sadness, anger, hope.
Your experience is unique and valuable. 💜
Thank you
from all at The Thyroid Trust
Just email your story to [email protected]
.....the free Workplace Thyroid Toolkit...
... a practical resource developed by the University of Aberdeen with input
from The Thyroid Trust.
This Toolkit is designed to support employees and employers foster a more
inclusive, informed and healthy workplace.
The toolkit helps...
raise awareness and understanding of thyroid conditions
support open conversations between colleagues
improve well-being and boost productivity.
Whether you are in HR, management, or an employee affected by a thyroid
condition, this toolkit could be for you.
Please share it. Use it. Start the conversation.
... a practical resource developed by the University of Aberdeen with input
from The Thyroid Trust.
This Toolkit is designed to support employees and employers foster a more
inclusive, informed and healthy workplace.
The toolkit helps...
raise awareness and understanding of thyroid conditions
support open conversations between colleagues
improve well-being and boost productivity.
Whether you are in HR, management, or an employee affected by a thyroid
condition, this toolkit could be for you.
Please share it. Use it. Start the conversation.
Select the link below to choose a butterfly and take part in our
activity to raise awareness and support each other.
Thyroid Intelligence - sharing and passing on the knowledge - Thyroid Trust | Visufund
activity to raise awareness and support each other.
Thyroid Intelligence - sharing and passing on the knowledge - Thyroid Trust | Visufund
