THE THYROID TRUST, THYROID FRIENDS
  • Home
  • About
    • Our Team
    • Annual Report
    • Awareness Videos
    • What people say about us
    • Work for us
  • Events
    • TTT Events Listings
    • International Thyroid Awareness Week 2022
    • Thyroid Cancer Awareness Month
    • Events by other organisations
    • Meeting reports
  • Information
    • Covid-19
    • News >
      • Press Releases
      • Media Coverage
      • MHRA news
      • Women's Health Strategy
      • Funding News >
        • November 2019 Funding News
        • Summer 2020
    • T3 News and Resources >
      • Liothyronine Dossier 2018
      • A GP writes
      • Scottish Parliament
    • Information Videos
    • Expert Insight
    • Research >
      • Research References
    • NICE Guidelines >
      • NICE Guideline Thyroid Cancer
    • Mother Baby Iodine
    • Patient Stories >
      • 24 Questions Videos
      • Michael Rosen
      • Vroni
      • Vicky
      • Karen
      • Michelle
      • Kelly
      • Pamela
      • Helga
      • Mary
      • Submit Your Story
  • Fun stuff
    • Badges
    • Butterfly Art
    • Fondant Thyroids Workshop
    • Gallery
    • Kindness Rocks
    • CAN Affirmation Cards
    • Seaside Walk 2019
  • Blog
  • Contact
    • T3 report form
  • Support Us
    • Fantastic Fundraisers
    • Butterflies Arise!
    • T-Shirts
    • Internet Shoppers
  • Donate

From a thyroid storm, to life without a thyroid 

Karen's story

Picture
In 2009 I became very unwell due to what I now know was a Thyroid Storm. A Thyroid Storm is a life-threatening medical condition associated with untreated hyperthyroidism (over-active thyroid). I was admitted to hospital and spent a week on an emergency medical ward where I was diagnosed with Graves Disease, an auto-immune disease and a major cause of hyperthyroidism. After a year of treatment, I was told that I had no option but to have surgery to remove my thyroid and so I had a Total Thyroidectomy - on 25 May 2010.

Like many people I knew nothing about the thyroid gland, what it does or how important it is. The thyroid is our engine, it drives our metabolism and effects every cell in the body. I have found living a healthy and normal life without a thyroid is very difficult. There is no cure for Graves Disease and, as I no longer have a thyroid, I will be on medication for the rest of my life.

The Thyroid Trust has been an invaluable source of support, information and friendship during what has been a very difficult time for me. The support group meetings in central London provide a great opportunity to meet others with thyroid disease and share knowledge and experiences - the highs and the lows. The Trust is a new and very small charity - it relies solely on donations to be able to continue its fantastic work.

24 Questions with Karen

Karen was interviewed for our TTT 24 Questions video series in November 2020. The video is now available to view on our youtube channel. 

Karen's Butterfly Bike Ride

25th May 2020 was International Thyroid Awareness Day.  Karen undertook a 25km butterfly themed bike ride to raise much-needed funds for The Thyroid Trust! An absolute star, with brilliant support from her family and friends she raised a fantastic £240! Thank you Karen!
Karen's fundraising page
View this post on Instagram

A post shared by The Thyroid Trust (@thyroidtrust)

Find our more about International Thyroid Awareness Day and Week and discover more ways you can get involved. 

for everyone affected by thyroid disease


Meetings

We organise regular information and support meetings online and in person.
Click here for upcoming dates.    ​

Subscribe to The Thyroid Trust mailing list

* indicates required


We are a small independent charity. We receive no government funding and are reliant on donations for our income. Please support us. 

PlEASE CONSIDER SUPPORTING OUR VITAL WORK

Donate
The donate button above takes you to a secure donation processing platform, JustGiving. Please contact us if you would prefer to make a direct bank transfer to donate via any other means, or if you are interested in volunteering. 

Proud members of the following organisations
Picture
Picture
Tweets by ThyroidTrust
Thyroid Federation International logo on The Thyroid Trust website
Picture
NCVO logo on The Thyroid Trust website
The Thyroid Trust is a member of National Voices  membership logo
With thanks to all  our supporters, including: 
National Lottery Community Fund logo
Funded By Garfield Weston Foundation

Correspondence ADDRESS

15 Great College Street, London, SW1P 3RX

The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292
Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX
Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. 
Read our Privacy Policy updated 23/5/18, .
Picture
  • Home
  • About
    • Our Team
    • Annual Report
    • Awareness Videos
    • What people say about us
    • Work for us
  • Events
    • TTT Events Listings
    • International Thyroid Awareness Week 2022
    • Thyroid Cancer Awareness Month
    • Events by other organisations
    • Meeting reports
  • Information
    • Covid-19
    • News >
      • Press Releases
      • Media Coverage
      • MHRA news
      • Women's Health Strategy
      • Funding News >
        • November 2019 Funding News
        • Summer 2020
    • T3 News and Resources >
      • Liothyronine Dossier 2018
      • A GP writes
      • Scottish Parliament
    • Information Videos
    • Expert Insight
    • Research >
      • Research References
    • NICE Guidelines >
      • NICE Guideline Thyroid Cancer
    • Mother Baby Iodine
    • Patient Stories >
      • 24 Questions Videos
      • Michael Rosen
      • Vroni
      • Vicky
      • Karen
      • Michelle
      • Kelly
      • Pamela
      • Helga
      • Mary
      • Submit Your Story
  • Fun stuff
    • Badges
    • Butterfly Art
    • Fondant Thyroids Workshop
    • Gallery
    • Kindness Rocks
    • CAN Affirmation Cards
    • Seaside Walk 2019
  • Blog
  • Contact
    • T3 report form
  • Support Us
    • Fantastic Fundraisers
    • Butterflies Arise!
    • T-Shirts
    • Internet Shoppers
  • Donate