Who are we with thyroid disease? 

The Thyroid Trust You're Not Alone Information and Support Events in London
That's a question we've often asked ourselves, since we've found we sometimes feel so changed by this illness that our sense of self can feel somewhat lost at times.  That's perhaps the primary reason that we find it so valuable to meet and talk to other people living with thyroid disease. We can all support each other, both through the hard times and by sharing our positive experiences of being restored to a good level of wellbeing and receiving good care.  It also makes it vital for us to be able to access reliable information about our conditions.

The Thyroid Trust has been set up by a group of thyroid patients who have been meeting regularly in London since 2010. We are working towards registering as a new charity, The Thyroid Trust. Our constitution and policy documents are available to view on request.   The Trust's leadership team is made up of patients, medics and supporters - click here to learn more about the members of the board of Trustees and our Director

We run regular Thyroid Friends meetings in Central London. At the support meetings we run, we talk about all things thyroid and listen to endocrinologists and other experts share their knowledge with us.   We are keen to hear from you if you are an endocrinologist who would like to give a talk at one of our events. 

We are always looking for new volunteers, providing they will abide by codes of practice that ensure we all behave responsibly towards one another. We are a values based organisation who act with honesty, integrity and kindness. 

We are committed to sharing comprehensive, medically approved, patient literature on all thyroid conditions. ​ See our resources page for more information. 

We are also registered with NICE as key stakeholders for development of the new guidelines for Thyroid Disease: assessment and management. 

Together with our partners, we are proactive about raising awareness of issues related to thyroid health and providing effective advocacy to help influence health policy to best serve the interests of thyroid patients.  

The brand identity for The Thyroid Trust represents a diverse, open support circle where everyone is welcome.

Get in touch if you'd like to help or want to know more about our group.