Who are we with thyroid disease? 

 That's a question we've often asked ourselves, since we've found we sometimes feel so changed by this illness that our sense of self can feel somewhat lost at times.  That's perhaps the primary reason that we find it so valuable to meet and talk to other people living with thyroid disease. We can all support each other, both through the hard times and by sharing our positive experiences of being restored to a good level of wellbeing and receiving good care.  It also makes it vital for us to be able to access reliable information about our conditions.

The Thyroid Trust, also known as TTT and Thyroid Friends Network, was set up by a group of thyroid patients who have been meeting regularly in London since 2010.  In May 2019 we became a registered charity, number 1183292. We are very small and new but we have hit the ground running since starting to work on setting up the new charity, since mid 2017, with a focus on advocacy and awareness work as well as regular events. 

Our constitution and policy documents are available to view on request.   

The Trust's leadership team is made up of patients, medics and supporters - click here to learn more about the members of the board of Trustees and our Director

We run regular Thyroid Friends Support and Information meetings in Central London. At our events, we talk about all things thyroid and listen to endocrinologists and other experts share their knowledge with us.  We are keen to hear from you if you are a relevant professional, particularly if you are an endocrinologist, who would like to give a talk. 

We are always looking for new volunteers, providing they will abide by codes of practice that ensure we all behave responsibly towards one another. We are a values based organisation who act with honesty, integrity and kindness. 

We are committed to sharing comprehensive, medically approved, patient literature on all thyroid conditions. ​ See our Information pages for more information, including Information Videos which have been made at some of our events, so that people unable to attend can still benefit from hearing the talks. 

We are also registered with NICE as key stakeholders for development of thyroid disease related guidelines and we are listed as approved public information providers, on the new guideline for Thyroid Disease: assessment and management. 

Together with our partners, we are proactive about raising awareness of issues related to thyroid health and providing effective advocacy to help influence health policy to best serve the interests of thyroid patients.   Read about our work around improving access to T3 (liothyronine), for those patients who require it, here. 

The brand identity for The Thyroid Trust represents a diverse, open support circle where everyone is welcome.  Our colour scheme reflects our values of openness, learning, transparency, professionalism and caring. 

Get in touch if you'd like to help or want to know more about our group. 

If you'd like to support us please consider donating money, time or a gift in kind. It would mean the world.  Donations can be made by clicking here, or the Donate button below.  We would be particularly grateful if you would be prepared to make a commitment to give a regular amount, from as little as £2 each month, to help us develop sustainable funding for the future.  Or perhaps your employer is keen to support charities that you care about - let us know if you might be able to access any support from your company or any Trust or Foundation you may be connected with.  We want to grow The Thyroid Trust to be able to do more to make things better for thyroid patients.  It's vital work and we can't do it alone. 

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