Mental Health, A Medical Conference And A Hopeful Future
One foot in the Graves’
photo by Emma Simpson on Unsplash
Imagine waking up one day to realise you no longer recognise yourself in the mirror, your relationships are falling apart, you feel strange pains throughout your body and you feel a deep, heavy emptiness in your chest that nothing will shift.
If you’re someone who has thyroid eye disease, you’ll know exactly what I mean. If you’re someone that knows someone that’s had it, you might know what I mean, but if you’re neither, the chances are you won’t.
And that’s understandable, as it’s a rare disease.
It’s also a complex one, in which the eye muscles, eyelids, tear glands and fatty tissues behind the eyes become inflamed. Often accompanied by anxiety and depression caused by fluctuating thyroid levels, and exacerbated by the change in appearance and other physical symptoms.
As there is no cure, efforts are focused on effective resolution of the life changing symptoms.
I have Graves' disease which, for me, caused both hyperthyroidism (overactive thyroid) and thyroid eye disease (TED).
It wasn’t until my recent trip to EUGOGO Conference in Pisa, which I attended as a patient representative, that I realised how important it is that I share my story.
I was lucky enough to attend the Conference on behalf of the recently formed Thyroid Trust, a patient-led charity for people affected by thyroid disease in the UK.
Read more...
If you’re someone who has thyroid eye disease, you’ll know exactly what I mean. If you’re someone that knows someone that’s had it, you might know what I mean, but if you’re neither, the chances are you won’t.
And that’s understandable, as it’s a rare disease.
It’s also a complex one, in which the eye muscles, eyelids, tear glands and fatty tissues behind the eyes become inflamed. Often accompanied by anxiety and depression caused by fluctuating thyroid levels, and exacerbated by the change in appearance and other physical symptoms.
As there is no cure, efforts are focused on effective resolution of the life changing symptoms.
I have Graves' disease which, for me, caused both hyperthyroidism (overactive thyroid) and thyroid eye disease (TED).
It wasn’t until my recent trip to EUGOGO Conference in Pisa, which I attended as a patient representative, that I realised how important it is that I share my story.
I was lucky enough to attend the Conference on behalf of the recently formed Thyroid Trust, a patient-led charity for people affected by thyroid disease in the UK.
Read more...
Author
Kelly Southcott is a coach and strategy consultant and the founder of Kivo.
She works with businesses, non-profits and individuals, helping them to harness the confidence to change. She’s fascinated by the mind, fuelling her psychology studies and ongoing research into organisational behaviour.
When she’s not coaching, writing, studying or delivering workshops, you’ll find her reading, doing yoga or teaching meditation.
Photography credits
We are grateful to the following photographers on Unsplash for use of their original images to help illustrate Kelly's report Marie Rouilly, Daria Shevtsoka and Emma Simpson.
The conference photographs were taken by Kelly.
She works with businesses, non-profits and individuals, helping them to harness the confidence to change. She’s fascinated by the mind, fuelling her psychology studies and ongoing research into organisational behaviour.
When she’s not coaching, writing, studying or delivering workshops, you’ll find her reading, doing yoga or teaching meditation.
Photography credits
We are grateful to the following photographers on Unsplash for use of their original images to help illustrate Kelly's report Marie Rouilly, Daria Shevtsoka and Emma Simpson.
The conference photographs were taken by Kelly.
for everyone affected by thyroid disease
We are a small independent charity. We receive no government funding and are reliant on donations for our income. Please support us.
PlEASE CONSIDER SUPPORTING OUR VITAL WORKThe donate button above takes you to a secure donation processing platform, Virgin Money Giving.
Please contact us if you would prefer to make a direct bank transfer to donate via any other means, or if you are interested in volunteering. Proud members of the following organisations
|
|
|
|
|
|
|
|
Supported by National Lottery Community Fund. Thank you to all National Lottery players.
Correspondence ADDRESS71-75 Shelton Street, London, WC2H 9JQ
The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292 Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. Read our Privacy Policy updated 23/5/18, . |
|