Measuring Quality of Life in Thyroid Patients.
This is the video of a talk delivered at The Thyroid Trust webinar 7th November 2020 by Torquil Watt, the developer of the widely used international scientific instrument for measuring impact of thyroid disorders on quality of life, the ThyPRO, Torquil presented the background for its development, how it was developed to reflect the experiences of patients and how it was scientifically validated. He illustrated the use of ThyPRO in clinical research; how it can be applied and what it can provide us. He also spoke about his dreams for the future, including the development of a portal for scientifically sound patient-centered information about thyroid diseases, modules for self-monitoring, for patient-clinician communication tools and for patient empowerment interventions. Torquil is an Endocrinologist and Associate Professor, PhD, DMSc, at the University of Copenhagen, Institute of Clinical Medicine.
The first half of the event was on the ThyPRO and after the break the discussion was on the patient-engagement portal, on which Torquil was very keen to receive input from attendees. The talk ran over slightly and we are now discussing how best to follow up on this discussion to give people more opportunity to ask questions and contribute ideas. The talk begins 5 minutes into the video of the event.
The first half of the event was on the ThyPRO and after the break the discussion was on the patient-engagement portal, on which Torquil was very keen to receive input from attendees. The talk ran over slightly and we are now discussing how best to follow up on this discussion to give people more opportunity to ask questions and contribute ideas. The talk begins 5 minutes into the video of the event.
Lessons Learned from a Patient that a Book Cannot Teach.
Leading endocrinologist Professor Atul Kalhan FRCP MD, gave an excellent talk and answered questions on lessons he has learned from a patient which a book can not teach, at The Thyroid Trust online Information Event on 12th September 2020.
This is a video of his talk and includes the event introduction by TTT's Lorraine Williams (the first 4minutes 50seconds).
Professor Kalhan, shared what he has learned from treating a patient with a polyglandular autoimmune syndrome, over 10 years.
Professor Kalhan is a Consultant in Diabetes & Endocrinology at the Royal Glamorgan Hospital and Honorary Consultant Endocrinologist at University Hospital of Wales, Cardiff as well as Course Director for the PG Diploma and MSc in Endocrinology at University of South Wales.
This is a video of his talk and includes the event introduction by TTT's Lorraine Williams (the first 4minutes 50seconds).
Professor Kalhan, shared what he has learned from treating a patient with a polyglandular autoimmune syndrome, over 10 years.
Professor Kalhan is a Consultant in Diabetes & Endocrinology at the Royal Glamorgan Hospital and Honorary Consultant Endocrinologist at University Hospital of Wales, Cardiff as well as Course Director for the PG Diploma and MSc in Endocrinology at University of South Wales.
T3/T4 combination therapy for hypothyroidism
A short video on T3/T4 combination therapy for hypothyroidism by CoMICs team led by Dr Punith Kempegowda at the Institute of Metabolism and Systems Research, University of Birmingham.
Modern Management of Hypothyroidism, Dr Paul Jenkins
London based Consultant Physician and Endocrinologist, Dr Paul Jenkins MA BChir MD FRCP, gave a talk entitled
Modern Management of Hypothyroidism.
Recorded at The Thyroid Trust Information Event at Crown Court Church, Covent Garden, London, on Saturday 13th April 2019.
Modern Management of Hypothyroidism.
Recorded at The Thyroid Trust Information Event at Crown Court Church, Covent Garden, London, on Saturday 13th April 2019.
The Management of Hypothyroidism #ToftTalk
Consultant Physician, Dr Anthony Toft, CBE LVO MD FRCP, gave an excellent talk, on The Management of Hypothyroidism, at our Information Event at Crown Court Church on 24th November 2018. This event was so popular it developed it's own hashtag #ToftTalk!
The talk and Q&A was kindly filmed by our friend, broadcaster Jules Serkin, using her handheld mobile phone and a microphone. We are eternally grateful to her for doing this. The footage has been lightly edited to include slides summarising the questions asked from the audience. Unfortunately some of the discussion was not recorded, but we got most of it and are very happy to be able to share.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
The talk and Q&A was kindly filmed by our friend, broadcaster Jules Serkin, using her handheld mobile phone and a microphone. We are eternally grateful to her for doing this. The footage has been lightly edited to include slides summarising the questions asked from the audience. Unfortunately some of the discussion was not recorded, but we got most of it and are very happy to be able to share.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
The new NICE Guideline on thyroid disease
The British Thyroid Foundation organised an information event in London on 8th February 2020, on the new NICE guideline on thyroid disease assessment and management, with several expert speakers. They produced a series of films of the day so that everyone can watch the talks. You can view all of these films on the British Thyroid Foundation YouTube channel.
The Evolution of Thyroid Surgery
Consultant Endocrine Surgeon, Professor Fausto Palazzo MS MRCS, gave a fascinating talk on the Evolution of Thyroid Surgery, at our Information Event at St Pancras Community Association, on 22nd September 2018.
Watch the talk and Q&A session on this video which was kindly made for us by our friends at Mayflower Films, below.
More videos
Our short awareness video, Let's Talk About Thyroid Health, was shot the same day as our video with Professor Palazzo.
Our TTT24Q video interview series with some of our thyroid friends is designed to help us all feel less alone with thyroid disease and to get to know each other better.
The Thyroid Trust Journey and Advocacy Work
The Thyroid Trust's Director, Lorraine Williams gave a talk on our journey and advocacy work up to March 2020 at our first Zoom event on 28th March 2020.
The two main talks from this event, on Evidence and Influencing, by Dr Brooke Lumisci and Hannah West, are also available to watch now, on our Youtube channel.
This event was part of an ongoing discussion, we are keen to involve as many patients as possible in, to help build our collective voice and influence. If this is of interest to you, please contact us.
The two main talks from this event, on Evidence and Influencing, by Dr Brooke Lumisci and Hannah West, are also available to watch now, on our Youtube channel.
This event was part of an ongoing discussion, we are keen to involve as many patients as possible in, to help build our collective voice and influence. If this is of interest to you, please contact us.
More films to follow. If you would like to help with sharing, filming or editing future video footage please get in touch.
for everyone affected by thyroid disease
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The Thyroid Trust is also known as TTT and Thyroid Friends Network,
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