It is recognised that much more research is needed into thyroid disorders of all kinds. This page provides details of opportunities for patients to contribute to current research projects and links to further information.
Visit our Research References page for links to published research studies which may be of interest.
Check out our interview with Professor Margaret Rayman, a patient and a scientist, to learn about some of the latest research findings on thyroid function and nutritional science.
Visit our Research References page for links to published research studies which may be of interest.
Check out our interview with Professor Margaret Rayman, a patient and a scientist, to learn about some of the latest research findings on thyroid function and nutritional science.
Experiences of patients with hypothyroidism.
Pilot questionnaire.
|
As members of Thyroid Federation International, an international network of thyroid patient support organisations, we are pleased to have been asked to help distribute this pilot survey, for patients with hypothyroidism.
At the end of the survey there is a further link to send to friends and family who do not have hypothyroidism which we would also encourage you to share. Picker are the founders of the approach of Person Centred Care. Find out more about this study on our blog. The academic board for this study includes leading thyroidologists, Petros Perros- UK, Laszlo Hegedus - Denmark, Enrico Papini - Italy, and Endre Nagy- Hungary. |
British Thyroid Foundation and Sheffield Hallam University Study on Hypothyroidism
Researcher, Joe Straw, is looking at the impact of hypothyroidism on quality of life. If you have congenital or acquired hypothyroidism, blood test results within the reference range (defined as euthyroid) and are treated with levothyroxine (only), you are invited to complete this survey.
Thyroid Patients and Social Media
PHD student, Judith Schossboek, is researching the use of social media by thyroid patient individuals and groups. If you'd to help add to her knowledge she is conducting interviews. Click here for full information on her research.
Patients Association survey informing NHS England
Have you been denied treatment on the basis of cost, or a ‘CCG decision’?
Complete the Patients Association survey and share your experiences with them. Your views will help inform their response to NHS England. It will take around 10 mins to complete.
Liothyronine (L-T3) for hypothyroidism is one of the treatments being looked at. More info: https://bit.ly/2LfLtgR
Complete the Patients Association survey and share your experiences with them. Your views will help inform their response to NHS England. It will take around 10 mins to complete.
Liothyronine (L-T3) for hypothyroidism is one of the treatments being looked at. More info: https://bit.ly/2LfLtgR
NHS England review of 2017 consultation on "items which should not be routinely prescribed in primary care"
you can also respond directly to NHS England consultation, and attend meetings on the review of the 2017 consultation: Items which should not routinely be prescribed in primary care. To find out more and take part in the update and consultation on further guidance for CCGs click here.
(we would encourage you to do both if you have the energy)
(we would encourage you to do both if you have the energy)
Graves Disease clinical trials
Survey for anyone treated for thyroid cancer
The American Thyroid Association (ATA) is collecting information and opinions from patients about their experience with thyroid cancer to better inform medical providers about how patients experience the challenge of thyroid cancer diagnosis and treatment. ATA encourages anyone with a history of thyroid cancer to take this survey. Feel free to disseminate this survey link broadly, and encourage others to take the survey. ATA also encourages all thyroid healthcare professionals to share this survey with their patients.
Survey results will be compiled and discussed by thyroid leaders at the American Thyroid Association Satellite Symposium: The Spectrum of Thyroid Cancer, from Surveillance to Systemic Therapy on Friday, March 16, 2018 at McCormick Place West in Chicago, IL. Subsequently, survey results will be posted online with free access to the public as well as made available through publication.
Your responses are anonymous and should only take a few minutes to complete.
The survey is intended for anyone with thyroid cancer - it is not limited to North America. If you are not in the USA, just enter the name of your country in the “ZIP code” field.
https://www.surveymonkey.com/r/thyroidcancerpatientsurvey
Survey results will be compiled and discussed by thyroid leaders at the American Thyroid Association Satellite Symposium: The Spectrum of Thyroid Cancer, from Surveillance to Systemic Therapy on Friday, March 16, 2018 at McCormick Place West in Chicago, IL. Subsequently, survey results will be posted online with free access to the public as well as made available through publication.
Your responses are anonymous and should only take a few minutes to complete.
The survey is intended for anyone with thyroid cancer - it is not limited to North America. If you are not in the USA, just enter the name of your country in the “ZIP code” field.
https://www.surveymonkey.com/r/thyroidcancerpatientsurvey
More thyroid cancer research
Cancer Research UK provide more information about thyroid cancer, including details of current research studies, here.
for everyone affected by thyroid disease
We are a small independent charity. We receive no government funding and are reliant on donations for our income. Please support us.
PlEASE CONSIDER SUPPORTING OUR VITAL WORKThe donate button above takes you to a secure donation processing platform, Virgin Money Giving.
Please contact us if you would prefer to make a direct bank transfer to donate via any other means, or if you are interested in volunteering. Proud members of the following organisations
|
|
|
|
|
|
|
|
Supported by National Lottery Community Fund. Thank you to all National Lottery players.
Correspondence ADDRESS71-75 Shelton Street, London, WC2H 9JQ
The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292 Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. Read our Privacy Policy updated 23/5/18, . |
|