Thyroid Trust eventsWe normally meet regularly in central London. During the Covid19 pandemic, we are running online events instead. Everyone is welcome to join us, including friends, family and interested professionals. However, as a UK charity we do have a requirement that you are resident in the UK to join our online discussions, since it could become confusing if people were to start talking about healthcare systems in different countries. We are a friendly bunch and simply ask all attendees to adhere to our "ground rules"..
Refreshments: tea, coffee and herbal tea are normally provided at our events and we usually also have some nice biscuits. Our online events will include comfort breaks where you can enjoy refreshments of your choice in your own space. Please book your place for any of our events, including online events, via the booking links below, so we can manage numbers and send out feedback forms and any follow up information afterwards. Contact us to let us know if you have an idea for a future speaker or meeting topic you would like us to try and arrange. Upcoming meeting dates
International Thyroid Awareness Week
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Events by other organisationsTo find out about further London meetings, arranged by other organisations we endorse, that may be of interest to you, click here.
You can help spread the word about our events by sharing on Facebook or Twitter, or downloading, printing and displaying a poster if you have access to a noticeboard where interested people may see it.
Please note that during the Covid-19 :Pandemic, all our events are now taking place online
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Previous meetings
This patient led group has met regularly in London since 2010, originally at the Royal Free Hospital in Hampstead and at Crown Court Church in Covent Garden since 2014. Speakers at our events have included many eminent British Thyroid Association endocrinologists and other medical professionals and scientists, such as from the Sense About Science, Ask for Evidence and Expert Patient programmes, all of whom have kindly given their time to help educate us about our conditions. We aim to add full details of previous meetings to this site, for reference, in due course. You can see the reports we have uploaded so far here.
16th May 2020
11am - 12:30pm
Online:
11am - 12:30pm
Online:
With guest speaker, Dr Renée Hoenderkamp, who will gave a talk and answered questions on
Hypothyroidism from both ends of the Stethoscope
Hypothyroidism from both ends of the Stethoscope
Dr Renée is an NHS GP with, additionally, her own successful private aesthetic clinic. She is the resident GP for BBC Radio London, OK! Magazine and Express Newspapers as well as a blogger for GP magazine Pulse and regular medical vlogger. She has a keen personal interest in health and nutrition and strives to combine this with her approach to medicine.
She has personal experience, as a patient, with hypothyroidism and sat on the NICE Committee for the development of the new NICE guideline for thyroid disease assessment and management, where she was a strong advocate for access to more personalised approach to care, particularly for those patients who may not thrive on levothyroxine alone. She does not shy away from the sometimes controversial aspects of effective management of an underactive thyroid. We are delighted to have her as our speaker for this event.
We recorded this event and are working to make the footage available online and get all the outstanding questions answered, since we ran out of discussion time.
She has personal experience, as a patient, with hypothyroidism and sat on the NICE Committee for the development of the new NICE guideline for thyroid disease assessment and management, where she was a strong advocate for access to more personalised approach to care, particularly for those patients who may not thrive on levothyroxine alone. She does not shy away from the sometimes controversial aspects of effective management of an underactive thyroid. We are delighted to have her as our speaker for this event.
We recorded this event and are working to make the footage available online and get all the outstanding questions answered, since we ran out of discussion time.
28th March 2020
11am - 12:30pm
Online Event
Watch the video recordings of the three talks at this event on The Thyroid Trust Youtube Channel.
11am - 12:30pm
Online Event
Watch the video recordings of the three talks at this event on The Thyroid Trust Youtube Channel.
Evidence and Patient Advocacy, with guest speakers Dr Brooke Lumisci and Hannah West.
How to tell when information about your condition is reliable and how to use reliable information and guidelines to access the best standard of care for your thyroid condition.
This event included a discussion of The Thyroid Trust's advocacy work and how we are working with partners to make things better for thyroid patients.
How to tell when information about your condition is reliable and how to use reliable information and guidelines to access the best standard of care for your thyroid condition.
This event included a discussion of The Thyroid Trust's advocacy work and how we are working with partners to make things better for thyroid patients.
Brooke is an Ask for Evidence Ambassador for the charity Sense About Science. Ask for Evidence is a public campaign that helps you to ask for the evidence behind health claims, news stories, ads and policies. Providing support to show you how to ask the right questions and how to understand different types of evidence. They’re here to help every step of the way – they can help you find the right person to ask; give you tips on questions to ask and how to spot good evidence; and help you to make sense of the answer you receive.
Following a career in academic medical research culminating in a PhD in cancer biology and diagnostics Brooke is now an evidence analyst at the MS Society. The evidence team generate and scrutinise evidence and knowledge to support the policy, influencing and strategy across the organisation. Brooke believes it's important that we as a community demand that science is communicated truthfully and accessibly. This will help all those who would like to be involved in translating findings into impactful, real world outcomes to join the conversation.
Hannah is senior campaigns officer at the MS Society and is experienced in running healthcare campaigns, communications, policy and safety.
This event was for anyone affected by thyroid disease, including friends, family and interested professionals.
We do not charge for our events but would be grateful if you would consider making a donation of £5 to help us cover our costs, if you are able to. Any donation amount will be very welcome!
Following a career in academic medical research culminating in a PhD in cancer biology and diagnostics Brooke is now an evidence analyst at the MS Society. The evidence team generate and scrutinise evidence and knowledge to support the policy, influencing and strategy across the organisation. Brooke believes it's important that we as a community demand that science is communicated truthfully and accessibly. This will help all those who would like to be involved in translating findings into impactful, real world outcomes to join the conversation.
Hannah is senior campaigns officer at the MS Society and is experienced in running healthcare campaigns, communications, policy and safety.
This event was for anyone affected by thyroid disease, including friends, family and interested professionals.
We do not charge for our events but would be grateful if you would consider making a donation of £5 to help us cover our costs, if you are able to. Any donation amount will be very welcome!
Saturday 25th January 2020
11am - 2pm
At Palestra, 197 Blackfriars Road, Southwark, London, SE1 8NJ
Dr Kristien Boelaert MD, PhD, MRCP will a talk and answer questions on: "An Overview of the new NICE Guidelines on the Management of Thyroid Diseases"
FREE
Please book to attend via Eventbrite.
11am - 2pm
At Palestra, 197 Blackfriars Road, Southwark, London, SE1 8NJ
Dr Kristien Boelaert MD, PhD, MRCP will a talk and answer questions on: "An Overview of the new NICE Guidelines on the Management of Thyroid Diseases"
FREE
Please book to attend via Eventbrite.
This event is for anyone affected by thyroid disease, including friends, family and interested professionals.
The programme will include plenty of time for questions and networking. Refreshments will be provided.
Kristien is a Consultant Endocrinologist, University Hospital Birmingham (UHB) NHS FoundationTrust and
Clinical Governance Lead for Endocrinology within UHB NHS FT as well as a Senior MRC-funded Research Fellow and practising Consultant Endocrinologist with lead roles in the Thyroid Services at the UHB NHS Foundation Trust. She sits on the committee for the development of the new NICE Guidelines on the Management of Thyroid Diseases which are due to be published in November 2019.... more
Palestra, map. Nearest Tube Southwark.
Saturday 5th December 2019
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Come along for an informal catch up if you are free!
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Come along for an informal catch up if you are free!
Saturday November 23rd 2019
11am - 2pm
At Crown Court Church, Russell Street, Covent Garden, WC2B 5EZ
11am - 2pm
At Crown Court Church, Russell Street, Covent Garden, WC2B 5EZ
Professor Margaret Rayman and Dr Sarah Bath gave a talk on Nutrition and Thyroid Disease: The importance of iodine, iron and selenium to thyroid function.
Margaret is Professor of Nutritional Medicine at the University of Surrey where, in 1998, she set up, and now directs, the highly respected MSc Programme in Nutritional Medicine. Her research, which includes a number of randomised controlled trials, centres on the importance of trace elements to human health.
Margaret is Professor of Nutritional Medicine at the University of Surrey where, in 1998, she set up, and now directs, the highly respected MSc Programme in Nutritional Medicine. Her research, which includes a number of randomised controlled trials, centres on the importance of trace elements to human health.
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Sarah is a Lecturer in Public Health Nutrition at the University of Surrey and her research is focused on iodine deficiency in the UK. She previously held a Medical Research Council (MRC) Population Health Scientist Fellowship, which helped to develop her work on iodine. She is currently on the committee of the UK Iodine Group, and on the Scientific Advisory Board of the World Iodine Association (WIA) as well as the committee of the Nutrition Society Training Academy.
Please note that Margaret and Sarah are not clinicians and cannot give medical advice - and it is always the case that the speakers at our events are unable to give individuals medical advice.
Please note that Margaret and Sarah are not clinicians and cannot give medical advice - and it is always the case that the speakers at our events are unable to give individuals medical advice.
Crown Court Church in Covent Garden:
Saturday 19th October 2019
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Just come along.
1:30pm-2pm
At: The Wellcome Trust Cafe in Euston Road.
Team Building discussion, facilitated by Kelly Southcott, for all those interested in helping The Thyroid Trust to grow and do more to make things better for thyroid patients.
Please book to attend this discussion, via Eventbrite.
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Just come along.
1:30pm-2pm
At: The Wellcome Trust Cafe in Euston Road.
Team Building discussion, facilitated by Kelly Southcott, for all those interested in helping The Thyroid Trust to grow and do more to make things better for thyroid patients.
Please book to attend this discussion, via Eventbrite.
Saturday 14th September 2019
11am - 2pm
At Palestra, Southwark, London, SE1 8NJ
view map
FREE
Expert Health coach, Barbara Babcock, will deliver an Introduction to Health Coaching.
Read more...
11am - 2pm
At Palestra, Southwark, London, SE1 8NJ
view map
FREE
Expert Health coach, Barbara Babcock, will deliver an Introduction to Health Coaching.
Read more...
Summer Social 2019
Saturday 17th August - Seaside Walk from Broadstairs to Ramsgate...
Thanks to everyone who joined us on this walk and all the friends and family who kindly sponsored the walkers, we were thrilled with the support!
More information here.
See the Gallery for photos of this and our previous social events.
Saturday 17th August - Seaside Walk from Broadstairs to Ramsgate...
Thanks to everyone who joined us on this walk and all the friends and family who kindly sponsored the walkers, we were thrilled with the support!
More information here.
See the Gallery for photos of this and our previous social events.
Saturday 8th June 2019
11am-1pm
At: The Crick Institute Cafe in St Pancras, 1 Midland Road.
We had an informal Learning and Growing discussion, for those interested in helping The Thyroid Trust develop our advocacy, information sharing and awareness work.
11am-1pm
At: The Crick Institute Cafe in St Pancras, 1 Midland Road.
We had an informal Learning and Growing discussion, for those interested in helping The Thyroid Trust develop our advocacy, information sharing and awareness work.
Saturday 25th May 2019
11am - 12pm
Theresa Baker hosted an informal get together on World Thyroid Day
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
11am - 12pm
Theresa Baker hosted an informal get together on World Thyroid Day
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
Saturday 13th April 2019
11am - 2pm
At: Crown Court Church, Russell Street, London WC2B 5EZ.
Consultant Physician and Endocrinologist, Dr Paul Jenkins MA BChir MD FRCP, recently appointed Trustee of The Thyroid Trust, gave a talk on Optimising Treatment for Hypothyroidism
Here is the poster for this event and details on Facebook.
We love it when supporters help us spread the word!
Please get in touch if you'd like to help with future events.
11am - 2pm
At: Crown Court Church, Russell Street, London WC2B 5EZ.
Consultant Physician and Endocrinologist, Dr Paul Jenkins MA BChir MD FRCP, recently appointed Trustee of The Thyroid Trust, gave a talk on Optimising Treatment for Hypothyroidism
Here is the poster for this event and details on Facebook.
We love it when supporters help us spread the word!
Please get in touch if you'd like to help with future events.
Saturday 16th March 2019
11am - 12pm
Theresa Baker hosted an informal get together
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
11am - 12pm
Theresa Baker hosted an informal get together
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
Saturday 26th January
11am - 2pm
Self Care and Partnerships, Thyroid Patients' Voices Event
At: Crown Court Church, Russell Street, London WC2B 5EZ.
11am - 2pm
Self Care and Partnerships, Thyroid Patients' Voices Event
At: Crown Court Church, Russell Street, London WC2B 5EZ.
Dr Anthony Toft
24 November 2018
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism
This event was recorded, see the film on our Information Videos page. The talk was so popular it even developed its own hashtag on social media! #ToftTalk.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism
This event was recorded, see the film on our Information Videos page. The talk was so popular it even developed its own hashtag on social media! #ToftTalk.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
22 Sept 2018
11am - 2pm
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB
Consultant Endocrine Surgeon And Trustee of The Thyroid Trust, Professor Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.
Our excellent friends at Mayflower Films kindly filmed the talk,watch it on our Information Videos page.
11am - 2pm
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB
Consultant Endocrine Surgeon And Trustee of The Thyroid Trust, Professor Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.
Our excellent friends at Mayflower Films kindly filmed the talk,watch it on our Information Videos page.
Click here to see pictures from some of our previous events including our 2017 Summer Seaside Walk and 2018 Summer Social event at Sky Garden London.
Wednesday 27th June 2018
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings.
Details on Facebook - if you would be interested in an East Kent group you can comment on the FB event, or email us.
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings.
Details on Facebook - if you would be interested in an East Kent group you can comment on the FB event, or email us.
19 May 2018
11am - 2pm
Patients Voices event on the theme of monitoring and tracking our health
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Posters for this event can be downloaded here, please let us know if you would like to help distribute posters for this event. Thank you!
To get more information on the programme, please click here.
11am - 2pm
Patients Voices event on the theme of monitoring and tracking our health
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Posters for this event can be downloaded here, please let us know if you would like to help distribute posters for this event. Thank you!
To get more information on the programme, please click here.
24 March 2018
Public and Patient Involvement in Research
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.
Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.
Public and Patient Involvement in Research
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.
Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.
20 January 2018, Mental Health and Thyroid Disease
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way.
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress.
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way.
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress.
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25th November 2017, Patients Voices Winter Warmer event
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ This event was on the theme of Self Care, with guest speaker Michele Varchione who has hypothyroidism and shared some gentle chair based yoga exercises we could all join in with as well as some great insights on self care. We also enjoyed a very interesting short talk from group member and artist Peter Esslemont, about his journey with thyroid cancer. There are some fun photos in the gallery of this meeting. Michelle teaches mainly in Clapham junction and in Sheen. Let her know you are from The Thyroid Trust if enquiring about classes with her. www.kulawellbeing.co.uk http://yogahub.london/ You might like to follow Michelle on Instagram. Her posts are very inspiring. @ShalaTeacher. |
23rd September 2017, 11am - 2pm, London Meeting,
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event. Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report.
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event. Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report.
8th July 2017, 11am - 2pm, London Meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ. See report.
3rd June 2017, we walked from Broadstairs to Ramsgate on the east Kent coast, to raise awareness of thyroid disease and have a nice day out together. See report.
13th May 2017, 11am - 2pm, London meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
for everyone affected by thyroid disease
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Correspondence ADDRESS71-75 Shelton Street, London, WC2H 9JQ
The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292 Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. Read our Privacy Policy updated 23/5/18, . |
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