Thyroid Trust eventsWe meet regularly in central London. Everyone is welcome to come along, including friends, family and interested professionals. We are a friendly bunch and simply ask all attendees to adhere to our "ground rules".
Refreshments: tea, coffee and herbal tea are provided and we usually also have some nice biscuits. Please book your place for any of our events via the booking links below, so we can manage numbers and make sure we have enough chairs and refreshments for everyone. Contact us to let us know if you have an idea for a future speaker or meeting topic you would like us to try and arrange. 2019 meeting datesThe following meetings, except the Summer Social, are currently scheduled to take place at Crown Court Church in Covent Garden.
We are grateful to the church for their wonderful support in allowing us to continue to use their space which is ideally located just off The Piazza. This page will be updated and attendees notified if the venue changes. We are seeking a hall with full wheelchair access, if you can help with that please let us know. Saturday 26th January 11am - 2pm Self Care and Partnerships, Thyroid Patients' Voices Event Please book your free place via Eventbrite, by clicking on the event title above. Posters for the January and April events can be downloaded here if you would like to display one on a noticeboard in your community. Please also share this event on Facebook. Saturday 13th April 11am - 2pm programme tbc July Summer Social - details tbc - likely to be a trip to the Kent seaside Saturday 21st September 11am - 2pm programme tbc November 16th or 23rd, tbc 11am - 2pm programme tbc |
Events by other organisationsTo find out about further London meetings, arranged by other organisations we endorse, that may be of interest to you, click here.
You can help spread the word about our events by sharing on Facebook or Twitter, or downloading, printing and displaying a poster if you have access to a noticeboard where interested people may see it.
Crown Court Church in Covent Garden: |
Previous meetings
This patient led group has met regularly since 2010, originally at the Royal Free Hospital in Hampstead and at Crown Court Church in Covent Garden since 2014. Speakers at our events have included many eminent British Thyroid Association endocrinologists and other medical professionals and scientists, such as from the Sense About Science, Ask for Evidence and Expert Patient programmes, all of whom have kindly given their time to help educate us about our conditions. We aim to add full details of previous meetings to this new site, for reference, in due course. You can see the reports we have uploaded so far here.
Hypothyroidism Event
Dr Anthony Toft
24 November 2018
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism
At: Crown Court Church, Russell Street, London WC2B 5EZ.
This event was recorded and we will share the video online once it has been edited. with many thanks to our dear friend, Jules Serkin, for kindly making the recording.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism
At: Crown Court Church, Russell Street, London WC2B 5EZ.
This event was recorded and we will share the video online once it has been edited. with many thanks to our dear friend, Jules Serkin, for kindly making the recording.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
22 Sept 2018
11am - 2pm
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB
Consultant Endocrine Surgeon, Mr Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.
Our excellent friends at Mayflower Films kindly filmed the talk and we hope to be able to make it available to view online soon.
11am - 2pm
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB
Consultant Endocrine Surgeon, Mr Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.
Our excellent friends at Mayflower Films kindly filmed the talk and we hope to be able to make it available to view online soon.
Click here to see pictures from our 2017 Summer Seaside Walk and 2018 Summer Social event at Sky Garden London.
Wednesday 27th June 2018
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings.
Details on Facebook - if you would be interested in an East Kent group you can comment on the FB event, or email us.
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings.
Details on Facebook - if you would be interested in an East Kent group you can comment on the FB event, or email us.
19 May 2018
11am - 2pm
Patients Voices event on the theme of monitoring and tracking our health
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Posters for this event can be downloaded here, please let us know if you would like to help distribute posters for this event. Thank you!
To get more information on the programme, please click here.
11am - 2pm
Patients Voices event on the theme of monitoring and tracking our health
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Posters for this event can be downloaded here, please let us know if you would like to help distribute posters for this event. Thank you!
To get more information on the programme, please click here.
24 March 2018
Public and Patient Involvement in Research
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.
Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.
Public and Patient Involvement in Research
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.
Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.
20 January 2018, Mental Health and Thyroid Disease
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way.
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress.
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way.
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress.
25th November 2017, Patients Voices Winter Warmer event
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
This event was on the theme of Self Care with guest speaker Michele Varchione who has hypothyroidism and shared some gentle chair based yoga exercises we could all join in with as well as some great insights on self care and a very interesting short talk from group member and artist Peter Esslemont, about his journey with thyroid cancer. There are some photos in the gallery of this meeting!
23rd September 2017, 11am - 2pm, London Meeting,
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event. Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report.
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
This event was on the theme of Self Care with guest speaker Michele Varchione who has hypothyroidism and shared some gentle chair based yoga exercises we could all join in with as well as some great insights on self care and a very interesting short talk from group member and artist Peter Esslemont, about his journey with thyroid cancer. There are some photos in the gallery of this meeting!
23rd September 2017, 11am - 2pm, London Meeting,
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event. Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report.
8th July 2017, 11am - 2pm, London Meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ. See report.
3rd June 2017, we walked from Broadstairs to Ramsgate on the east Kent coast, to raise awareness of thyroid disease and have a nice day out together. See report.
13th May 2017, 11am - 2pm, London meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
3rd June 2017, we walked from Broadstairs to Ramsgate on the east Kent coast, to raise awareness of thyroid disease and have a nice day out together. See report.
13th May 2017, 11am - 2pm, London meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
for everyone affected by thyroid disease
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The Thyroid Trust is also known as Thyroid Friends Network,
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