THE THYROID TRUST, THYROID FRIENDS
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Thyroid Patient Stories 

Stories matter

Since we began The Thyroid Trust we have started to collect patient stories and we share some on these pages, that we hope will be useful for people affected by thyroid disease who are looking for positive and inspiring case studies. 

Additionally we are collecting stories from anyone who would like to have their experience recorded, with a view to using the information provided in a variety of ways, depending on permissions granted by the individuals concerned, to help make things better for thyroid patients in the future. 

In 2020 we started a series of chat show style video interviews, with people involved with The Thyroid Trust. You may enjoy watching some of these videos. The series is called TTT 24 Questions ~TTT24Q. 

#ThyroidStories 

In a moving prose and poetry book, This is Not My Nose, renowned writer and broadcaster Michael Rosen tells the the story of his long undiagnosed hypothyroidism and recovery and how he felt very unlike himself for a period until he was successfully treated. ​

Karen's story starts with a thyroid storm, describes life without a thyroid, explains how The Thyroid Trust has helped her and reveals what she got up to on International Thyroid Awareness Day 2020. 

Helga's story tells how specialist treatment for hypothyroidism finally resolved difficult symptoms she had struggled with and got her running again!  (And read about Helga's amazing fundraising too). 

Read Michelle's story where she explains the benefits of practicing mindful self care and keeping moving. 

Read Kelly's story, about having Graves disease, which was diagnosed in her twenties and caused both an overactive thyroid and thyroid eye disease, then fifteen years later attending the EUGOGO Conference in Pisa as a patient representative for The Thyroid Trust.

Look out for Maureen's story, coming soon, as told by Lord Borwick in the House of Lords and hopefully resolved, thanks to our interventions and support from her local CCG. 

Also Jenny's story - of postpartum thyroiditis - originally published on the National Childbirth Trust website, NCT Matters.

Some stories are more difficult - and we feel it is important that those  are collected and used to inform research, health policy and clinical practice. 

Read Pamela's story about being misdiagnosed with depression. 

Una Cavanagh writes about the negative impact of shaming on diagnosis on our thyroid friends blog. 
​
If you would like to share your thyroid story with us - either to help inspire others or because you feel it is important that it is documented and may be used to help improve care for others - we would love to hear from you and you can submit it via the following form. 
Submit Your Story
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Thyroid Patient Maureen Elliott - The Thyroid Trust
Thyroid patient, Maureen Elliott

for everyone affected by thyroid disease


Meetings

We organise regular information and support meetings online and in person.
Click here for upcoming dates.    ​

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We are a small independent charity. We receive no government funding and are reliant on donations for our income. Please support us. 

PlEASE CONSIDER SUPPORTING OUR VITAL WORK

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The donate button above takes you to a secure donation processing platform, JustGiving. Please contact us if you would prefer to make a direct bank transfer to donate via any other means, or if you are interested in volunteering. 

Proud members of the following organisations
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Tweets by ThyroidTrust
Thyroid Federation International logo on The Thyroid Trust website
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NCVO logo on The Thyroid Trust website
The Thyroid Trust is a member of National Voices  membership logo
With thanks to all  our supporters, including: 
National Lottery Community Fund logo
Funded By Garfield Weston Foundation

Correspondence ADDRESS

15 Great College Street, London, SW1P 3RX

The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292
Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX
Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. 
Read our Privacy Policy updated 23/5/18, .
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  • Home
  • About
    • Our Team
    • Annual Report
    • Awareness Videos
    • What people say about us
    • Work for us
  • Events
    • TTT Events Listings
    • International Thyroid Awareness Week 2022
    • Thyroid Cancer Awareness Month
    • Events by other organisations
    • Meeting reports
  • Information
    • Covid-19
    • News >
      • Press Releases
      • Media Coverage
      • MHRA news
      • Women's Health Strategy
      • Funding News >
        • November 2019 Funding News
        • Summer 2020
    • T3 News and Resources >
      • Liothyronine Dossier 2018
      • A GP writes
      • Scottish Parliament
    • Information Videos
    • Expert Insight
    • Research >
      • Research References
    • NICE Guidelines >
      • NICE Guideline Thyroid Cancer
    • Mother Baby Iodine
    • Patient Stories >
      • 24 Questions Videos
      • Michael Rosen
      • Vroni
      • Vicky
      • Karen
      • Michelle
      • Kelly
      • Pamela
      • Helga
      • Mary
      • Submit Your Story
  • Fun stuff
    • Badges
    • Butterfly Art
    • Fondant Thyroids Workshop
    • Gallery
    • Kindness Rocks
    • CAN Affirmation Cards
    • Seaside Walk 2019
  • Blog
  • Contact
    • T3 report form
  • Support Us
    • Fantastic Fundraisers
    • Butterflies Arise!
    • T-Shirts
    • Internet Shoppers
  • Donate