Upcoming meeting dates
‘Rethinking Hypothyroidism’ book talk by Prof. Antonio Bianco, MD, PhD
Sunday 4th June 2023
7pm - 8:30pm
Online Zoom meeting
Register your place via Eventbrite here
The Thyroid Trust welcomes you to join Professor Antonio Bianco, MD, PhD as he speaks on his book ‘Rethinking Hypothyroidism’
Antonio Bianco, MD, PhD is a professor of medicine and a member of the Committee on Molecular Metabolism and Nutrition at the University of Chicago, where he runs a laboratory funded by the National Institutes of Health to study thyroid hormones. Bianco is also a former president of the American Thyroid Association(2015-16) and author of ‘Rethinking Hypothyroidism’.
The event Zoom link will be on the registration confirmation email and will be repeated in the reminder emails we send on the lead up to our events.
This event is open to everyone and we ask for a donation when registering your place. Your donation will be helping support the vital work of The Thyroid Trust and ensure that we can continue to make things better for all Thyroid patients so thank you! However, please get in contact with us via our contact form if you are not in a position to donate at this.
Please share our event social media posts to your networks - Facebook
7pm - 8:30pm
Online Zoom meeting
Register your place via Eventbrite here
The Thyroid Trust welcomes you to join Professor Antonio Bianco, MD, PhD as he speaks on his book ‘Rethinking Hypothyroidism’
Antonio Bianco, MD, PhD is a professor of medicine and a member of the Committee on Molecular Metabolism and Nutrition at the University of Chicago, where he runs a laboratory funded by the National Institutes of Health to study thyroid hormones. Bianco is also a former president of the American Thyroid Association(2015-16) and author of ‘Rethinking Hypothyroidism’.
The event Zoom link will be on the registration confirmation email and will be repeated in the reminder emails we send on the lead up to our events.
This event is open to everyone and we ask for a donation when registering your place. Your donation will be helping support the vital work of The Thyroid Trust and ensure that we can continue to make things better for all Thyroid patients so thank you! However, please get in contact with us via our contact form if you are not in a position to donate at this.
Please share our event social media posts to your networks - Facebook
Zoom Guidance
If you need help with using Zoom to access our online meetings we have prepared a short guide you can download below:
Events by other organisations
To find out about further events that may be of interest,
arranged by other organisations we endorse, click here.
arranged by other organisations we endorse, click here.
Previous meetings
Patient Voices Support Meeting
Saturday 13th May 2023
10:30am - 12:30pm
The event will take place at Crown Court Church,
Russell Street, Covent Garden, London WC2B 5EZ
Register your place via Eventbrite here
Join us at our Patient Voices support meeting in the hall at the Crown Court Church in Covent Garden on Saturday 13th May. This is an opportunity to catch-up with each other and share how everyone has been doing.
Tea and coffee will be provided and donations are welcomed.
Get in touch if you can help out on the day by emailing us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks - Facebook
10:30am - 12:30pm
The event will take place at Crown Court Church,
Russell Street, Covent Garden, London WC2B 5EZ
Register your place via Eventbrite here
Join us at our Patient Voices support meeting in the hall at the Crown Court Church in Covent Garden on Saturday 13th May. This is an opportunity to catch-up with each other and share how everyone has been doing.
Tea and coffee will be provided and donations are welcomed.
Get in touch if you can help out on the day by emailing us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks - Facebook
Talking Graves, Hyperthyroidism and RAI Treatment with Helen Chambers: Online Peer Support Meeting
Sunday 30th April 2023
6:30pm - 7:30pm
Online Zoom meeting
Book via Eventbrite here
The Thyroid Trust welcomes you to join Helen Chambers for an online peer support meeting talking Graves, Hyperthyroidism and RAI Treatment. Fellow thyroid patient and writer Helen Chambers will be sharing her own personal experiences of Graves’ Disease, Hyperthyroidism and RAI treatment.
Listen to Helen talk about her own thyroid journey and then join us for an online peer support question and answer session. There will also be the opportunity, if you wish and time allowing, to share your own experiences of living with Graves’ Disease, Hyperthyroidism and or RAI treatment. You can read Helen’s blog, My big, Fat Thyroid here
6:30pm - 7:30pm
Online Zoom meeting
Book via Eventbrite here
The Thyroid Trust welcomes you to join Helen Chambers for an online peer support meeting talking Graves, Hyperthyroidism and RAI Treatment. Fellow thyroid patient and writer Helen Chambers will be sharing her own personal experiences of Graves’ Disease, Hyperthyroidism and RAI treatment.
Listen to Helen talk about her own thyroid journey and then join us for an online peer support question and answer session. There will also be the opportunity, if you wish and time allowing, to share your own experiences of living with Graves’ Disease, Hyperthyroidism and or RAI treatment. You can read Helen’s blog, My big, Fat Thyroid here
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
A.R. Arthur Literacy skills session- Managing your Thyroid Journey
Sunday 23rd April 2023
7pm - 8pm
Online Zoom meeting
Book via Eventbrite here
The Thyroid Trust welcomes you to join A.R. Arthur for an online literary skills session to help you manage your thyroid journey.
Journaling is the practice of writing in a journal about the thoughts, feelings and physical sensations that come up for us in connection with life events.
It can help you prioritise problems, fear, and concerns. Track your symptoms to help you recognise any triggers and learn ways to better control them. Help you record accurate information you can share with your healthcare provider. It can also provide you with an opportunity for positive self-talk and help you manage the emotional and mental load of living with a chronic health condition.
Please come and join online for a literary Skills session to help you preserve through thyroid Illness with A.R Arthur.
Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
7pm - 8pm
Online Zoom meeting
Book via Eventbrite here
The Thyroid Trust welcomes you to join A.R. Arthur for an online literary skills session to help you manage your thyroid journey.
Journaling is the practice of writing in a journal about the thoughts, feelings and physical sensations that come up for us in connection with life events.
It can help you prioritise problems, fear, and concerns. Track your symptoms to help you recognise any triggers and learn ways to better control them. Help you record accurate information you can share with your healthcare provider. It can also provide you with an opportunity for positive self-talk and help you manage the emotional and mental load of living with a chronic health condition.
Please come and join online for a literary Skills session to help you preserve through thyroid Illness with A.R Arthur.
Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
Iron and selenium's role in thyroid function talk
Sunday 26th March 2023
7pm - 8pm
Online Zoom meeting
The Thyroid Trust welcomes you to join Professor Margaret Rayman as she speaks on iron and selenium role in thyroid function.
Professor Margaret Rayman has a doctorate in Inorganic Biochemistry from Somerville College, Oxford and has held post-doctoral fellowships at the Institute of Cancer Research and Imperial College.
Since 2007, she has been a Professor of Nutritional Medicine and the University of Surrey. Professor Rayman has researched Thyroid disease for many years and is a thyroid patient herself. She has published widely on the effects of selenium on human health, including a number of highly cited reviews in the Lancet. She has also produced two evidence-based cookbooks. Bio taken from https://www.surrey.ac.uk/people/margaret-rayman
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
This event is open to everyone and we ask for a donation when registering your place. Please get in contact with us via our contact form if you are not in a position to donate.
Please share our event social media posts to your networks - Facebook
7pm - 8pm
Online Zoom meeting
The Thyroid Trust welcomes you to join Professor Margaret Rayman as she speaks on iron and selenium role in thyroid function.
Professor Margaret Rayman has a doctorate in Inorganic Biochemistry from Somerville College, Oxford and has held post-doctoral fellowships at the Institute of Cancer Research and Imperial College.
Since 2007, she has been a Professor of Nutritional Medicine and the University of Surrey. Professor Rayman has researched Thyroid disease for many years and is a thyroid patient herself. She has published widely on the effects of selenium on human health, including a number of highly cited reviews in the Lancet. She has also produced two evidence-based cookbooks. Bio taken from https://www.surrey.ac.uk/people/margaret-rayman
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
This event is open to everyone and we ask for a donation when registering your place. Please get in contact with us via our contact form if you are not in a position to donate.
Please share our event social media posts to your networks - Facebook
Patient Voices Support Meeting with Hyperemesis Gravidarum Talk (Hybrid Event)
Saturday 25th February 2023
11am - 2pm
The event took place at Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ with an unrecorded online talk at the start
Join us at our Patient Voices support meeting in the hall at the Crown Court Church in Covent Garden on Saturday 25th February. There will a talk on be a talk on hyperemesis gravidarum (excessive nausea and vomiting after regular 'morning sickness') and the thyroid link as well as the opportunity to catch-up and share how everyone has been doing. If you cannot make the event in person there is also an option to join us via Zoom. Details of the online option will be sent in the Eventbrite registration confirmation email.
Tea and coffee will be provide but please feel free to bring your own lunch. Donations are welcomed.
Get in touch if you can help out on the day by emailing us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks - Facebook
Thyroid Poetry Café
Saturday 21st January 2023
6pm - 7pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Saturday 21st January at 6pm to talk about poetry inspired by our thyroid conditions...
Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America, started the Poetry Thyroid Cafe in May 2022. The Cafe is now the creative gem of the Thyroid Trust's event programme.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
6pm - 7pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Saturday 21st January at 6pm to talk about poetry inspired by our thyroid conditions...
Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America, started the Poetry Thyroid Cafe in May 2022. The Cafe is now the creative gem of the Thyroid Trust's event programme.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The event Zoom Link is on the registration confirmation email but we will also make sure you receive them in the reminder emails we will send closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
Thyroid Poetry Café
Sunday 6th November 2022
6pm - 7pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Sunday 6th November at 6pm to talk about poetry inspired by our thyroid conditions...
Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America, started the Poetry Thyroid Cafe in May 2022. The Cafe is now the creative gem of the Thyroid Trust's event programme.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The event Zoom Link is on the registration confirmation email but will be in the reminder emails sent closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
6pm - 7pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Sunday 6th November at 6pm to talk about poetry inspired by our thyroid conditions...
Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America, started the Poetry Thyroid Cafe in May 2022. The Cafe is now the creative gem of the Thyroid Trust's event programme.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The event Zoom Link is on the registration confirmation email but will be in the reminder emails sent closer to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
Thyroid Champions Roundtable
Monday 17th October 2022
5pm - 6:30pm
Online Zoom meeting
Join us for a Roundtable Discussion and Open Forum for thyroid patient leaders and supportive professionals.
Are you a patient leader or advocate, standing up for thyroid patients, committed to raising the profile of thyroid disease so that it gets more attention and treatment options are more freely available? Would you like to be more connected to others on the same journey and work together on initiatives that can make a difference?
Following our successful event in July we are holding a second Thyroid Champions event in October. This will consist of a roundtable discussion and open forum and will explore how thyroid patient advocates can work together more effectively to bring about change and help achieve our vision of a world where people affected by thyroid disease are taken seriously, treated well and better understood; where thyroid disease is widely talked about, where patients get all the information and support they need, and can feel empowered with their conditions.
This event will again be facilitated by our good friend and advisor Lord Hunt of Kings Heath, a past Labour Health Minister and now an active peer in the House of Lords, who has been a tireless supporter to thyroid patient groups over several years and has a good understanding of many of the issues we face.
The discussion will include patients who have worked with The Thyroid Trust and our partner organisations on the ongoing campaign to improve access to T3 on the NHS which you can read more about here.
This event aims to build on campaigning achievements to date and previous discussions from events in 2020 and 2021, which you may like to watch on The Thyroid Trust YouTube channel here before joining this session.
If you are able to make a donation when booking your place - please do
Please share our event social media posts to your networks - Facebook
5pm - 6:30pm
Online Zoom meeting
Join us for a Roundtable Discussion and Open Forum for thyroid patient leaders and supportive professionals.
Are you a patient leader or advocate, standing up for thyroid patients, committed to raising the profile of thyroid disease so that it gets more attention and treatment options are more freely available? Would you like to be more connected to others on the same journey and work together on initiatives that can make a difference?
Following our successful event in July we are holding a second Thyroid Champions event in October. This will consist of a roundtable discussion and open forum and will explore how thyroid patient advocates can work together more effectively to bring about change and help achieve our vision of a world where people affected by thyroid disease are taken seriously, treated well and better understood; where thyroid disease is widely talked about, where patients get all the information and support they need, and can feel empowered with their conditions.
This event will again be facilitated by our good friend and advisor Lord Hunt of Kings Heath, a past Labour Health Minister and now an active peer in the House of Lords, who has been a tireless supporter to thyroid patient groups over several years and has a good understanding of many of the issues we face.
The discussion will include patients who have worked with The Thyroid Trust and our partner organisations on the ongoing campaign to improve access to T3 on the NHS which you can read more about here.
This event aims to build on campaigning achievements to date and previous discussions from events in 2020 and 2021, which you may like to watch on The Thyroid Trust YouTube channel here before joining this session.
If you are able to make a donation when booking your place - please do
Please share our event social media posts to your networks - Facebook
Thyroid Poetry Café
Sunday 25th September 2022
7pm - 8pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Sunday 25th September at 7pm to talk about poetry inspired by our thyroid conditions...
This is The Thyroid Trust's third Poetry Thyroid Café with Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The Zoom Link will be sent in the week leading up to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
7pm - 8pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Sunday 25th September at 7pm to talk about poetry inspired by our thyroid conditions...
This is The Thyroid Trust's third Poetry Thyroid Café with Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The Zoom Link will be sent in the week leading up to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
Patient Voices Support Meeting
Saturday 17th September 2022
11am - 2pm
This event took place at Crown Court Church,
Russell Street, Covent Garden, London WC2B 5 EZ
If you are in need of a lift and something to look forward to then we’d love you to join us at our Patient Voices support meeting in central London on Saturday 17th September. We are so looking forward to seeing as many of you as possible.
The venue will be our usual place in the hall at the Crown Court Church in Covent Garden. There won’t be a speaker on this occasion - just an opportunity to catch-up with some ‘thyroid friends’, share how you’ve been doing during these past difficult months and generally have a good ol’ chin wag over a cuppa and maybe even a biscuit. Sounds bliss!!! I’m sure we’ll all find lots to talk about between the start time at 11am and when we leave at 2pm.
Donations are welcome, at your discretion. Refreshments will be provided. Tea, Coffee, Herbal Teas, biscuits and fruit.
There’ll be lots to do on the day so if you are able and willing to help with putting this event on please get in touch by email us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks - Facebook
11am - 2pm
This event took place at Crown Court Church,
Russell Street, Covent Garden, London WC2B 5 EZ
If you are in need of a lift and something to look forward to then we’d love you to join us at our Patient Voices support meeting in central London on Saturday 17th September. We are so looking forward to seeing as many of you as possible.
The venue will be our usual place in the hall at the Crown Court Church in Covent Garden. There won’t be a speaker on this occasion - just an opportunity to catch-up with some ‘thyroid friends’, share how you’ve been doing during these past difficult months and generally have a good ol’ chin wag over a cuppa and maybe even a biscuit. Sounds bliss!!! I’m sure we’ll all find lots to talk about between the start time at 11am and when we leave at 2pm.
Donations are welcome, at your discretion. Refreshments will be provided. Tea, Coffee, Herbal Teas, biscuits and fruit.
There’ll be lots to do on the day so if you are able and willing to help with putting this event on please get in touch by email us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks - Facebook
Thyroid Champions! A Roundtable Leadership Discussion
Thursday 21st July 2022
5pm - 6:30pm
Online Zoom meeting
Join us for a Roundtable Discussion and Open Forum for thyroid patient leaders and supportive professionals.
Would you like to be, or are you already, a patient leader, standing up for thyroid patients, committed to raising the profile of thyroid disease so that it gets more attention and treatment options are more freely available? Would you like to be more connected to others on the same journey and work together on initiatives that can make a difference?
Join a roundtable discussion and open forum to explore how thyroid patient leaders can work together more effectively to bring about change and help achieve our Vision: of a world where people affected by thyroid disease are taken seriously, treated well & better understood; where thyroid disease is widely talked about, patients get all the information & support they need, can live a good life & feel empowered with their conditions.
This event will be facilitated by our good friend and advisor Lord Hunt of Kings Heath, a past Labour Health Minister and now an active peer in the House of Lords, who has been a tireless supporter to thyroid patient groups over several years and has a good understanding of many of the issues we face.
The discussion will include patients who have worked with The Thyroid Trust and our partner organisations on the ongoing campaign to improve access to T3 on the NHS which you can read more about here.
This event aims to build on campaigning achievements to date and previous discussions from events in 2020 and 2021, which you may like to watch on The Thyroid Trust YouTube channel here before joining this session.
The Trustees of The Thyroid Trust are grateful for the support of the National Lottery Awards for All for our events programme. We still need more funds to be able to continue and increase our support, awareness raising and advocacy work, to meet a huge unmet need. If you are able to make a donation when booking your place - please do
Please share our event social media posts to your networks - Facebook
5pm - 6:30pm
Online Zoom meeting
Join us for a Roundtable Discussion and Open Forum for thyroid patient leaders and supportive professionals.
Would you like to be, or are you already, a patient leader, standing up for thyroid patients, committed to raising the profile of thyroid disease so that it gets more attention and treatment options are more freely available? Would you like to be more connected to others on the same journey and work together on initiatives that can make a difference?
Join a roundtable discussion and open forum to explore how thyroid patient leaders can work together more effectively to bring about change and help achieve our Vision: of a world where people affected by thyroid disease are taken seriously, treated well & better understood; where thyroid disease is widely talked about, patients get all the information & support they need, can live a good life & feel empowered with their conditions.
This event will be facilitated by our good friend and advisor Lord Hunt of Kings Heath, a past Labour Health Minister and now an active peer in the House of Lords, who has been a tireless supporter to thyroid patient groups over several years and has a good understanding of many of the issues we face.
The discussion will include patients who have worked with The Thyroid Trust and our partner organisations on the ongoing campaign to improve access to T3 on the NHS which you can read more about here.
This event aims to build on campaigning achievements to date and previous discussions from events in 2020 and 2021, which you may like to watch on The Thyroid Trust YouTube channel here before joining this session.
The Trustees of The Thyroid Trust are grateful for the support of the National Lottery Awards for All for our events programme. We still need more funds to be able to continue and increase our support, awareness raising and advocacy work, to meet a huge unmet need. If you are able to make a donation when booking your place - please do
Please share our event social media posts to your networks - Facebook
Thyroid Poetry Café
Sunday 31st July 2022
7pm - 8:00pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Sunday 31st July at 7pm to talk about poetry inspired by our thyroid conditions.
This is The Thyroid Trust's second Poetry Thyroid Café with Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The Zoom Link will be sent in the week leading up to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
7pm - 8:00pm
Online Zoom meeting
Join Anthony R Salandy, and friends on Sunday 31st July at 7pm to talk about poetry inspired by our thyroid conditions.
This is The Thyroid Trust's second Poetry Thyroid Café with Anthony, the editor of Fahmidan Journal, a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America.
Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review.
You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
The Zoom Link will be sent in the week leading up to the event.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
World Thyroid Day
and
International Thyroid Awareness Week 2022
25th May - 31st May 2022
See our ITAW22 Campaign pages for details of what's on during International Thyroid Awareness Week this year and how you can get involved.
Our theme for the week is #TalkThyroid. See Below for our events happening over this week. We would love to see you!
Also check out the Fhyroid Federation International Graves' Disease Seminar taking place on World Thyroid Day.
See our ITAW22 Campaign pages for details of what's on during International Thyroid Awareness Week this year and how you can get involved.
Our theme for the week is #TalkThyroid. See Below for our events happening over this week. We would love to see you!
Also check out the Fhyroid Federation International Graves' Disease Seminar taking place on World Thyroid Day.
Thyroid Poetry Café
Sunday 29th May 2022
7pm - 8:00pm
Online Zoom meeting
Join Anthony R Salandy, editor of Fahmidan Journal, and friends at this special online thyroid cafe, to talk about poetry inspired by our thyroid conditions.
Anthony is a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America. Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review. You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com/
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! We may also read some of the poems from Fahmidan Journal’s special issue published on World Thyroid Day in 2021. But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
Note that it is World Thyroid Day and International Thyroid Awareness Week from then 25th until 31st May. The Thyroid Trust’s theme this year is #TalkThyroid - see the campaign page or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
7pm - 8:00pm
Online Zoom meeting
Join Anthony R Salandy, editor of Fahmidan Journal, and friends at this special online thyroid cafe, to talk about poetry inspired by our thyroid conditions.
Anthony is a Black Mixed-race poet & writer with lived experience of thyroid disease, who has spent most of his life in Kuwait jostling between the UK & America. Anthony’s work has been published over 220 times internationally. Anthony has 2 published chapbooks titled ‘The Great Northern Journey’ 2020 (Lazy Adventurer Publishing) & ‘Vultures’ 2021 (Roaring Junior Press) as well as a novel ‘The Sands of Changed’ 2021 (Alien Buddha Press). Anthony’s Chapbook ‘Half Bred’ is the Winner of the 2021 ‘The Poetry Question’ Chapbook contest. Anthony is the EIC of Fahmidan Journal & Poetry Editor at Chestnut Review. You can find him on Twitter and Instagram as @arsalandy and at https://arsalandywriter.com/
If you have poetry you'd like to share please bring it along - there might be an opportunity to share some of it! We may also read some of the poems from Fahmidan Journal’s special issue published on World Thyroid Day in 2021. But mostly this will be an open free flowing conversation about writing around our feelings about our thyroid health, particularly through the poetic genre.
Note that it is World Thyroid Day and International Thyroid Awareness Week from then 25th until 31st May. The Thyroid Trust’s theme this year is #TalkThyroid - see the campaign page or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
#TalkGravesDisease Thyroid Café
Wednesday 25th May 2022
7pm - 8pm
Online Zoom meeting
Do you suffer from Hyperthyroidism? Have you been diagnosed with Graves Disease?
A diagnosis of Graves Disease can come as a shock to many people and leave them feeling scared and uncertain. They may have many questions and concerns but feel unable to talk to their friends or family about their diagnosis which can result in feelings of isolation and loneliness.
But thanks to The Thyroid Trust you are not alone with thyroid disease.
So, this year we have chosen #TalkThyroid as our theme for World Thyroid Day on 25th May 2022. The Thyroid Trust will be hosting a number of events to mark International Thyroid Awareness Week encouraging people to #TalkThyroid.
On Wednesday 25th May we will be hosting an online Thyroid Cafe especially for people diagnosed with, or affected by, Graves Disease. It’s an opportunity for us to #TalkGraves with others who understand exactly what it’s like living with this complex disease. The session will be hosted by Karen George who has lived experience of Graves Disease and has been a Trustee of the Thyroid Trust since the beginning and who helps run the regular support meetings we hold in central London.
The Thyroid Cafe is open to Graves’ patients, their family members and friends - anyone affected by hyperthyroidism and Graves Disease - Join Karen on Wednesday 25th May for a chat and to share your experience with Graves Disease.
Note that it is World Thyroid Day and International Thyroid Awareness Week from then 25th until 31st May. The Thyroid Trust’s theme this year is #TalkThyroid - see the campaign page or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
7pm - 8pm
Online Zoom meeting
Do you suffer from Hyperthyroidism? Have you been diagnosed with Graves Disease?
A diagnosis of Graves Disease can come as a shock to many people and leave them feeling scared and uncertain. They may have many questions and concerns but feel unable to talk to their friends or family about their diagnosis which can result in feelings of isolation and loneliness.
But thanks to The Thyroid Trust you are not alone with thyroid disease.
So, this year we have chosen #TalkThyroid as our theme for World Thyroid Day on 25th May 2022. The Thyroid Trust will be hosting a number of events to mark International Thyroid Awareness Week encouraging people to #TalkThyroid.
On Wednesday 25th May we will be hosting an online Thyroid Cafe especially for people diagnosed with, or affected by, Graves Disease. It’s an opportunity for us to #TalkGraves with others who understand exactly what it’s like living with this complex disease. The session will be hosted by Karen George who has lived experience of Graves Disease and has been a Trustee of the Thyroid Trust since the beginning and who helps run the regular support meetings we hold in central London.
The Thyroid Cafe is open to Graves’ patients, their family members and friends - anyone affected by hyperthyroidism and Graves Disease - Join Karen on Wednesday 25th May for a chat and to share your experience with Graves Disease.
Note that it is World Thyroid Day and International Thyroid Awareness Week from then 25th until 31st May. The Thyroid Trust’s theme this year is #TalkThyroid - see the campaign page or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
#TalkThyroid Butterfly Trek at the Seaside
Wednesday 25th May 2022
12pm - 12:30pm
Broadstairs seafront
Join Lorraine Williams, Director of The Thyroid Trust, and friends, on World Thyroid Day, for an afternoon at the seaside, walk and beach picnic in the pretty Kent coastal town of Broadstairs.
As the thyroid is a butterfly shaped gland: for the last two years, Lorraine has undertaken a fancy dress solo run between Broadstairs and Ramsgate to raise awareness of thyroid disease. This has become something of a tradition, so if you would like to join in by dressing up you are more than welcome to do so, but don’t worry, you can wear what you like! Just come and enjoy a nice day out and chat with some thyroid friends by the sea. If you’d like to get yourself a Thyroid Trust T shirt they are available on our website in return for a donation.
Meet at midday in front of the Visitor Information Kiosk, by the Royal Albion Hotel garden, overlooking the golden sands of Viking Bay. Enjoy a stroll around the town until 1:30pm then reconvene for a picnic on the beach - with the option to take a seat at the Funicular beach café instead if you’d find that more comfortable. Bring your own snacks to enjoy - and something to sit on if you don’t want to get sandy. There is a lift or the option of stairs down to the beach. The aim is to picnic at or in front of the Funicular Café at the bottom of the main stairs to the beach - just along from the site of the Inflatable Giraffe, which is usually located in front of the exit to the beach lift.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider making a donation.
You can support Lorraine’s Seaside Trek by donating on her JustGiving page: https://www.justgiving.com/fundraising/lorraine-williams-ttt-22
Note that it is World Thyroid Day and International Thyroid Awareness Week from then 25th until 31st May. The Thyroid Trust’s theme this year is #TalkThyroid - see the campaign page or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
12pm - 12:30pm
Broadstairs seafront
Join Lorraine Williams, Director of The Thyroid Trust, and friends, on World Thyroid Day, for an afternoon at the seaside, walk and beach picnic in the pretty Kent coastal town of Broadstairs.
As the thyroid is a butterfly shaped gland: for the last two years, Lorraine has undertaken a fancy dress solo run between Broadstairs and Ramsgate to raise awareness of thyroid disease. This has become something of a tradition, so if you would like to join in by dressing up you are more than welcome to do so, but don’t worry, you can wear what you like! Just come and enjoy a nice day out and chat with some thyroid friends by the sea. If you’d like to get yourself a Thyroid Trust T shirt they are available on our website in return for a donation.
Meet at midday in front of the Visitor Information Kiosk, by the Royal Albion Hotel garden, overlooking the golden sands of Viking Bay. Enjoy a stroll around the town until 1:30pm then reconvene for a picnic on the beach - with the option to take a seat at the Funicular beach café instead if you’d find that more comfortable. Bring your own snacks to enjoy - and something to sit on if you don’t want to get sandy. There is a lift or the option of stairs down to the beach. The aim is to picnic at or in front of the Funicular Café at the bottom of the main stairs to the beach - just along from the site of the Inflatable Giraffe, which is usually located in front of the exit to the beach lift.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider making a donation.
You can support Lorraine’s Seaside Trek by donating on her JustGiving page: https://www.justgiving.com/fundraising/lorraine-williams-ttt-22
Note that it is World Thyroid Day and International Thyroid Awareness Week from then 25th until 31st May. The Thyroid Trust’s theme this year is #TalkThyroid - see the campaign page or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
Please share our event social media posts to your networks - Facebook
#Talk Thyroid Patients’ Voices Event
Saturday 21st May 2022
11am - 1pm
Waterloo Action Centre, 14 Baylis Road, London, SE1 7AA
Watch a recording of the event here
Join us this special #TalkThyroid Patient Voices support meeting in central London on Saturday 21st May with guest speaker, Kamal Mandalia.
Kamal is an Associate Director for an Insurance and Pensions Company.
In October 2018 he was diagnosed with Papillary Thyroid Cancer having had no symptoms. After having a total Thyroidectomy he was asked by his GP to talk through his journey with some medical students.
Kamal will be talking about his own experience and the important role other patients may also be able to play in helping educate healthcare providers, by sharing their stories, so that clinicians and policy decision makers may better understand patient needs and accurately incorporate the patient voice into their services.
This event will also be an opportunity to hear more about the work The Thyroid Trust is doing to make things better for thyroid patients and to share your views and experiences.
Note that it is World Thyroid Day on 25th May and International Thyroid Awareness Week from then until 31st May. The Thyroid Trust’s theme this year is Talk Thyroid - see our website or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
FREE
Donations welcome to help us continue our vital work.
This event is kindly supported by the National Lottery Awards for All.
Please book to attend via Eventbrite.
This event is for anyone affected by thyroid disease, including friends, family and interested professionals.
The programme will include plenty of time for questions and networking.
Refreshments will be provided. We will be using disposable cups, please bring your own if you would like to.
Please share our event social media posts to your networks - Facebook
11am - 1pm
Waterloo Action Centre, 14 Baylis Road, London, SE1 7AA
Watch a recording of the event here
Join us this special #TalkThyroid Patient Voices support meeting in central London on Saturday 21st May with guest speaker, Kamal Mandalia.
Kamal is an Associate Director for an Insurance and Pensions Company.
In October 2018 he was diagnosed with Papillary Thyroid Cancer having had no symptoms. After having a total Thyroidectomy he was asked by his GP to talk through his journey with some medical students.
Kamal will be talking about his own experience and the important role other patients may also be able to play in helping educate healthcare providers, by sharing their stories, so that clinicians and policy decision makers may better understand patient needs and accurately incorporate the patient voice into their services.
This event will also be an opportunity to hear more about the work The Thyroid Trust is doing to make things better for thyroid patients and to share your views and experiences.
Note that it is World Thyroid Day on 25th May and International Thyroid Awareness Week from then until 31st May. The Thyroid Trust’s theme this year is Talk Thyroid - see our website or come along to this event to find out about how you can get involved - and share your ideas! Use the hashtag #TalkThyroid on social media
FREE
Donations welcome to help us continue our vital work.
This event is kindly supported by the National Lottery Awards for All.
Please book to attend via Eventbrite.
This event is for anyone affected by thyroid disease, including friends, family and interested professionals.
The programme will include plenty of time for questions and networking.
Refreshments will be provided. We will be using disposable cups, please bring your own if you would like to.
Please share our event social media posts to your networks - Facebook
How to find Waterloo Action Centre
An Evening with Billy Kenber discussing Sick Money
Tuesday 29th March 2022
7pm - 8:30pm
This event took place on Zoom, see the recording here
Join us with Billy Kenber for a discussion of his new book, 'Sick Money: The Truth About the Global Pharmaceutical Industry'.
The discussion will be chaired by leading endocrinologist, Dr Mark Vanderpump.
Billy Kenber is an award-winning investigative journalist who, in 2016, broke the story in The Times that the specialist thyroid treatment, liothyronine, an old generic medicine, had increased in price by 6000% in the preceding ten year period.
In his dramatic new book Sick Money: The Truth About the Global Pharmaceutical Industry, Billy explores the idea that medicines have become financial assets for drug companies and says that the way drugs are priced and who gets access to them can be dictated by shareholder value. As well as writing about liothyronine, he cites the example of an American hedge fund manager who increased the price of an HIV AIDS pill from $17.50 to $750 overnight and of a children's cancer drug left to expire - seemingly because it was more cost-effective than continuing to make it available to patients who needed it.
Billy’s book suggests that worrying industry issues have emerged; such as the price rises of liothyronine; and the reluctance to invest deeply in vaccines, because, once a disease is ‘conquered’, profits fall and so does the eagerness to put research money into them. This is particularly concerning for chronic conditions like diabetes and thyroid disease. Unless we take action, Billy argues, we risk a dramatic decline in the pace of drug development and a future in which medicines are only available to the highest bidder. Is he right?
Do we not need the drug companies, warts and all, to step up the plate, both to provide existing medicines that are known to help patients at a reasonable cost and to develop new treatments, particularly when we have to tackle a pandemic like Covid-19? Come and join the discussion. We’d love to hear your views on all of this. Billy will also discuss his experience of hearing about the impact on patients of the issues his book has uncovered and his thoughts on what needs to happen next.
Billy is very kindly donating his time to talk to us about his book and answer questions.
Please make a donation of any amount to secure your place. We suggest a minimum amount of £5, which will help support our work to do more on the issue of improving access to liothyronine and our wider work, to make things better for thyroid patients, including running more Support and Information events on Zoom and face to face. Our vision is of a world where people affected by thyroid disease are taken seriously, treated well & better understood; where thyroid disease is widely talked about, patients get all the information & support they need, can live a good life & feel empowered with their conditions.
You can buy a signed Hard Back copy of Sick Money from West End Lane Books
Please share our event social media posts to your networks
7pm - 8:30pm
This event took place on Zoom, see the recording here
Join us with Billy Kenber for a discussion of his new book, 'Sick Money: The Truth About the Global Pharmaceutical Industry'.
The discussion will be chaired by leading endocrinologist, Dr Mark Vanderpump.
Billy Kenber is an award-winning investigative journalist who, in 2016, broke the story in The Times that the specialist thyroid treatment, liothyronine, an old generic medicine, had increased in price by 6000% in the preceding ten year period.
In his dramatic new book Sick Money: The Truth About the Global Pharmaceutical Industry, Billy explores the idea that medicines have become financial assets for drug companies and says that the way drugs are priced and who gets access to them can be dictated by shareholder value. As well as writing about liothyronine, he cites the example of an American hedge fund manager who increased the price of an HIV AIDS pill from $17.50 to $750 overnight and of a children's cancer drug left to expire - seemingly because it was more cost-effective than continuing to make it available to patients who needed it.
Billy’s book suggests that worrying industry issues have emerged; such as the price rises of liothyronine; and the reluctance to invest deeply in vaccines, because, once a disease is ‘conquered’, profits fall and so does the eagerness to put research money into them. This is particularly concerning for chronic conditions like diabetes and thyroid disease. Unless we take action, Billy argues, we risk a dramatic decline in the pace of drug development and a future in which medicines are only available to the highest bidder. Is he right?
Do we not need the drug companies, warts and all, to step up the plate, both to provide existing medicines that are known to help patients at a reasonable cost and to develop new treatments, particularly when we have to tackle a pandemic like Covid-19? Come and join the discussion. We’d love to hear your views on all of this. Billy will also discuss his experience of hearing about the impact on patients of the issues his book has uncovered and his thoughts on what needs to happen next.
Billy is very kindly donating his time to talk to us about his book and answer questions.
Please make a donation of any amount to secure your place. We suggest a minimum amount of £5, which will help support our work to do more on the issue of improving access to liothyronine and our wider work, to make things better for thyroid patients, including running more Support and Information events on Zoom and face to face. Our vision is of a world where people affected by thyroid disease are taken seriously, treated well & better understood; where thyroid disease is widely talked about, patients get all the information & support they need, can live a good life & feel empowered with their conditions.
You can buy a signed Hard Back copy of Sick Money from West End Lane Books
Please share our event social media posts to your networks
Patient Voices Support Meeting
Saturday 26th February 2022
11am - 2pm
This event took place at Crown Court Church,
Russell Street, Covent Garden, London WC2B 5 EZ
If you are in need of a lift and something to look forward to then we’d love you to join us at our Patient Voices support meeting in central London on Saturday 26th February. Unbelievably, it will be the first time we’ve been able to meet face-to-face since 2019 and we are so looking forward to seeing as many of you as possible.
The venue will be our usual place in the hall at the Crown Court Church in Covent Garden. There won’t be a speaker on this occasion - just an opportunity to catch-up with some ‘thyroid friends’, share how you’ve been doing during these past difficult months and generally have a good ol’ chin wag over a cuppa and maybe even a biscuit. Sounds bliss!!! I’m sure we’ll all find lots to talk about between the start time at 11am and when we leave at 2pm.
The Office at the Crown Court Church have informed us that numbers will be strictly limited to 40 due to the ongoing Covid restrictions. If you’ve been to the venue before, you’ll know that there is sufficient space for us to spread out and socially distance. We will, of course, ask attendees to adhere to whatever Covid guidelines are in place at the time. We understand that individuals will want to take whatever measures they feel necessary to make them feel comfortable and safe and we ask everyone to respect each other’s wishes.
Donations are welcome, at your discretion. Refreshments will be provided. Tea, Coffee, Herbal Teas, biscuits and fruit.
There’ll be lots to do on the day so if you are able and willing to help with putting this event on please get in touch by email us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks
11am - 2pm
This event took place at Crown Court Church,
Russell Street, Covent Garden, London WC2B 5 EZ
If you are in need of a lift and something to look forward to then we’d love you to join us at our Patient Voices support meeting in central London on Saturday 26th February. Unbelievably, it will be the first time we’ve been able to meet face-to-face since 2019 and we are so looking forward to seeing as many of you as possible.
The venue will be our usual place in the hall at the Crown Court Church in Covent Garden. There won’t be a speaker on this occasion - just an opportunity to catch-up with some ‘thyroid friends’, share how you’ve been doing during these past difficult months and generally have a good ol’ chin wag over a cuppa and maybe even a biscuit. Sounds bliss!!! I’m sure we’ll all find lots to talk about between the start time at 11am and when we leave at 2pm.
The Office at the Crown Court Church have informed us that numbers will be strictly limited to 40 due to the ongoing Covid restrictions. If you’ve been to the venue before, you’ll know that there is sufficient space for us to spread out and socially distance. We will, of course, ask attendees to adhere to whatever Covid guidelines are in place at the time. We understand that individuals will want to take whatever measures they feel necessary to make them feel comfortable and safe and we ask everyone to respect each other’s wishes.
Donations are welcome, at your discretion. Refreshments will be provided. Tea, Coffee, Herbal Teas, biscuits and fruit.
There’ll be lots to do on the day so if you are able and willing to help with putting this event on please get in touch by email us at: Connect@thyroidtrust.org.
Please share our event social media posts to your networks
Thyroid Cancer Cafe
Saturday 18th September 2021
11am - 12:30pm
This event took place on Zoom
September is thyroid cancer awareness month. Bring your own coffee and join us in our virtual 'thyroid cafe' to talk about your experiences with thyroid cancer, moderated by Judith Taylor who is herself a two-time thyroid cancer survivor. Here are a few things we might talk about (but your ideas are more than welcome):
Everything you say will be confidential and the discussion will not be recorded or shared anywhere afterwards.
Find our more about thyroid cancer awareness month.
11am - 12:30pm
This event took place on Zoom
September is thyroid cancer awareness month. Bring your own coffee and join us in our virtual 'thyroid cafe' to talk about your experiences with thyroid cancer, moderated by Judith Taylor who is herself a two-time thyroid cancer survivor. Here are a few things we might talk about (but your ideas are more than welcome):
- When and how were you diagnosed?
- What information and support have you had during your thyroid cancer 'journey'? How could it be improved?
- Did you use the 'low iodine diet'? What was your experience?
- Did you have RAI? If so, were you given Thyrogen or did you follow the thyroxine 'withdrawal' method? How was your experience?
- Do you have any ongoing issues after your surgery?
- We might also talk about returning to work and financial/economic issues, sometimes known as 'the right to be forgotten'.
Everything you say will be confidential and the discussion will not be recorded or shared anywhere afterwards.
Find our more about thyroid cancer awareness month.
Getting the best treatment for hypothyroidism - Part Two
|
Wednesday 15th September 2021
6pm - 7:30pm This event took place on Zoom Hypothyroidism is a chronic lifelong condition which should be easy to treat. However, not everybody who takes thyroid hormone replacement treatment feels fully back to normal. Part 2 of this talk will continue to explore the complex evidence concerning wellbeing, hypothyroidism and thyroid hormone replacements. Our speaker Simon Pearce is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at Newcastle University. He is editor of the European Thyroid Association Journal and President of the British Thyroid Association. Here is the video recording of Part One and the outstanding Q&As from that session which Simon kindly answered in writing after his talk. We suggest you watch the video before attending Part Two. Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place. |
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Thyroid Cafe - Let the sun shine in with Karen George
Saturday 7th August 2021
11am - 12:30pm This event took place on Zoom The past 12-18 months have been incredibly difficult for everyone. For some of us living with a thyroid condition, life has been more challenging than ever. Trying to keep ourselves safe and virus-free whilst also managing our thyroid conditions has inevitably lead to some people feeling isolated, anxious and alone. The Thyroid Trust was created so that no-one ever feels alone with thyroid disease. With summer on its way and the hope of brighter days ahead we want to help banish the darkness and put the sunshine back into your life. So join us for our next Thyroid Cafe and “let the sunshine in”. The cafe will be held over Zoom and moderated by Karen George, who has lived experience of Graves’ Disease and is a founding Trustee of The Thyroid Trust. Bring your own coffee! Numbers for this event will be limited to ensure that all who attend can participate in the discussion. We are reliant on donations to be able to continue our vital work, supporting, informing and advocating for thyroid patients. If you are able to, please donate what you might have spent if this meeting was taking place in a real live cafe, instead of online! If money is tight for you though, don't worry, we still want you to come along - donations are entirely at your discretion, but please be generous if you can. Getting the best treatment for hypothyroidism - Part One |
Wednesday 7th July
6pm - 7:30pm
This event took place on Zoom
Watch the recording
Read the outstanding Q&As document from the chat, which Simon very kindly completed after the event
Hypothyroidism is a chronic lifelong condition which should be easy to treat. However, not everybody who takes thyroid hormone replacement treatment feels fully back to normal. This talk will explore the complex evidence concerning wellbeing, hypothyroidism and thyroid hormone replacements. Our speaker Simon Pearce is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at Newcastle University. He is editor of the European Thyroid
Association Journal and President of the British Thyroid Association.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
6pm - 7:30pm
This event took place on Zoom
Watch the recording
Read the outstanding Q&As document from the chat, which Simon very kindly completed after the event
Hypothyroidism is a chronic lifelong condition which should be easy to treat. However, not everybody who takes thyroid hormone replacement treatment feels fully back to normal. This talk will explore the complex evidence concerning wellbeing, hypothyroidism and thyroid hormone replacements. Our speaker Simon Pearce is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at Newcastle University. He is editor of the European Thyroid
Association Journal and President of the British Thyroid Association.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
IMSR Festival: The Power of the Patient Voice
19th June
11am - 12pm
Online event
11am - 12pm
Online event
Patients have an important role to play in advocating for research related to the health conditions we experience. This event is an opportunity to discuss the opportunities and challenges around doing this and to learn from other organisations representing different patient groups, AMEND and Verity, with clinicians and researchers at the Institute of Metabolism & Systems Research (IMSR), University of Birmingham. Our Director, Lorraine Williams, is one of the speakers, along with artist Vicky Roden who has hyperthyroidism and has worked with the scientists at IMSR on a project designed to improve treatment for Graves patients.
All welcome
All welcome
Creative Thyroid Cafe7th June 2021
11am - 12.30pm Took place on Zoom Join artist Vicky Roden and friends, to talk about creative artistic expression inspired by our thyroid conditions. If you have artworks you'd like to share please bring them to show - we'd love to see them! We might even read some of the poems from Fahmidan Journal’s special issue published on World Thyroid Day. We will limit numbers for this event to ensure everyone is able to join in with the discussion. As an artist with lived experience of hyperthyroidism, Vicky has worked collaboratively with The Centre for Systems Modelling & Quantitative Biomedicine (SMQB) at the University of Birmingham, on an innovative creative collaboration at the interface between art, mathematics, biology & healthcare. Vicky's practice encompasses a variety of media including textiles, embroidery, taxidermy and Live Art. Her work explores death, ritual, and points where women have historically found personal power and agency. As a former Hyperthyroid patient, with researchers at the SMQB working mathematical modelling with software, imaging and experimental data to create new clinical diagnostics for thyroid patients. For World Thyroid Day Vicky is also producing a fun prerecorded video creative workshop, demonstrating how to make fondant thyroids - so look out for that too! Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place. |
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Levothyroxine treatment and cholesterol in hypothyroidism
26th May 2021
6pm - 7:30pm
Took place on Zoom
Here is the event recording for Pete's talk.
Dr Pete Taylor FRCP MSc PhD kindly gave a talk and answered questions on an important new study he recently completed, with his colleague A C Bianco, which was published in Nature Review Endocrinology* at the beginning of 2020, levothyroxine treatment and cholesterol in hypothyroidism. This event will take place during International Thyroid Awareness Week, immediately following World Thyroid Day.
Pete is a Clinical Senior Lecturer and Consultant Endocrinologist in the Thyroid Research Group at Cardiff University and is widely published and regularly talks on different aspects of thyroid disease, including the use of T3 to treat hypothyroidism.
*Bianco, A.C., Taylor, P. Levothyroxine treatment and cholesterol in hypothyroidism. Nat Rev Endocrinol 16, 193–194 (2020). https://doi.org/10.1038/s41574-020-0323-2
Here is the event recording for Pete's talk.
6pm - 7:30pm
Took place on Zoom
Here is the event recording for Pete's talk.
Dr Pete Taylor FRCP MSc PhD kindly gave a talk and answered questions on an important new study he recently completed, with his colleague A C Bianco, which was published in Nature Review Endocrinology* at the beginning of 2020, levothyroxine treatment and cholesterol in hypothyroidism. This event will take place during International Thyroid Awareness Week, immediately following World Thyroid Day.
Pete is a Clinical Senior Lecturer and Consultant Endocrinologist in the Thyroid Research Group at Cardiff University and is widely published and regularly talks on different aspects of thyroid disease, including the use of T3 to treat hypothyroidism.
*Bianco, A.C., Taylor, P. Levothyroxine treatment and cholesterol in hypothyroidism. Nat Rev Endocrinol 16, 193–194 (2020). https://doi.org/10.1038/s41574-020-0323-2
Here is the event recording for Pete's talk.
Thyroid Cafe - to help plan for International Thyroid Awareness Week 2021
26th March
11am - 12:30pm
Took place On Zoom
International Thyroid Awareness Week is 25-31 May 2021 - with World Thyroid Day at the start.
We're holding an informal online Thyroid Cafe event for everyone interested in helping come up with ideas and get involved in activities for the week, to make the most of this opportunity
We'd love to see you and hear your ideas of things we can do together, and as individuals, during that week. We want to raise awareness of thyroid disease and also encourage people to do some fundraising to support our work: to make things better for thyroid patients in the UK.
We are a tiny charity and still very new, but we have big ambitions and we need to grow to be able to achieve more in the future.
Can you help? Would you like to be part of the conversation?
We'll kick off at 11am on Zoom, bring your own "elevenses".
Register using the Eventbrite link above and you'll be sent the Zoom link and dial in details.
We'll start by sharing what we did last year and our initial outline plans for 2021, then we want to hear any new ideas that anyone might have, to make more impact, reach more people and make more of a difference. If you want to commit to being involved and saying what you can do, or let us know what help you might need to realise any plans you might have, we'll be thrilled and hope we can work with you!
The more of us who take action and support each other, the more of an impact we can make, together
11am - 12:30pm
Took place On Zoom
International Thyroid Awareness Week is 25-31 May 2021 - with World Thyroid Day at the start.
We're holding an informal online Thyroid Cafe event for everyone interested in helping come up with ideas and get involved in activities for the week, to make the most of this opportunity
We'd love to see you and hear your ideas of things we can do together, and as individuals, during that week. We want to raise awareness of thyroid disease and also encourage people to do some fundraising to support our work: to make things better for thyroid patients in the UK.
We are a tiny charity and still very new, but we have big ambitions and we need to grow to be able to achieve more in the future.
Can you help? Would you like to be part of the conversation?
We'll kick off at 11am on Zoom, bring your own "elevenses".
Register using the Eventbrite link above and you'll be sent the Zoom link and dial in details.
We'll start by sharing what we did last year and our initial outline plans for 2021, then we want to hear any new ideas that anyone might have, to make more impact, reach more people and make more of a difference. If you want to commit to being involved and saying what you can do, or let us know what help you might need to realise any plans you might have, we'll be thrilled and hope we can work with you!
The more of us who take action and support each other, the more of an impact we can make, together
New Research into Thyroid Hormone Function in Covid19 Patients
Saturday 6th February 2021
11am - 12:30pm
FREE Online Event on Zoom, Here is the event recording.
Donations welcome but entirely optional
Learn about new research into thyroid hormone function in Covid19 patients with The Thyroid Trust and Dr Bernard Khoo.
The subject of this webinar will be new research into thyroid hormone function in Covid19 patients, published by Dr Bernard Khoo and colleagues.
Dr Khoo, who is a senior clinical lecturer in endocrinology at the Royal Free Hospital in London, has kindly agreed to give a talk and answer questions on this study.
Dr Khoo trained at the University of Cambridge. Specialist accreditation in Endocrinology and Diabetes at St Bartholomew’s, with Wellcome Trust Advanced Fellowship from 2003-2006. Since 2009, he has been Senior Clinical Lecturer in Endocrinology at UCL Medical School.
HIs specialist interests are in treatment of neuroendocrine tumours, as well as genetic endocrine disorders. He is the endocrinologist for the Royal Free Neuroendocrine Tumour Multidisciplinary Team.
This event is for anyone affected by thyroid disease, including friends, family and interested professionals.
There will be a 5 minute comfort break around the halfway point.
Questions and comments are welcomed. Please feel free to send any advance questions.
Please book to attend this FREE event via Eventbrite and you will be sent the Zoom dial in details in advance.
Here are some guidance notes regarding how to use the video conferencing application, Zoom if you need help with this.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.
New Therapeutic Horizons for Graves' Hyperthyroidism
Wednesday 2nd December 2020
6pm - 7:30pm
FREE Online Event, Here is the event recording.
Donations welcome but entirely optional
Treatments for Graves' Hyperthyroidism have remained largely unchanged for 70 yrs and sometimes don't work, or can lead to lifelong treatment for hypothyroidism, but now exciting new options are being investigated.
Simon Pearce, gave a talk and answer questions on what causes Graves’ disease and outline the existing conventional treatments. He told us about the latest research into possible new treatments and explain four different new therapeutic approaches that are in the pipeline, which clinicians hope may help Graves’ patients in the future.
Simon is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at
Newcastle University. He is editor of the European Thyroid Association Journal and President of the British Thyroid Association.
This event was for anyone affected by thyroid disease, including friends, family and interested professionals.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating. The Thyroid Trust is a registered charity in England and Wales, number 1183292. We are entirely reliant on the generosity of our supporters to be able to continue.
Please book to attend this FREE event via Eventbrite and you will be sent the Zoom dial in details in advance. Let us know if you require some guidance notes regarding how to use the video conferencing application, Zoom.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place. The Thyroid Trust is a registered charity in England and Wales, number 1183292. We are entirely reliant on the generosity of our supporters to be able to continue.
6pm - 7:30pm
FREE Online Event, Here is the event recording.
Donations welcome but entirely optional
Treatments for Graves' Hyperthyroidism have remained largely unchanged for 70 yrs and sometimes don't work, or can lead to lifelong treatment for hypothyroidism, but now exciting new options are being investigated.
Simon Pearce, gave a talk and answer questions on what causes Graves’ disease and outline the existing conventional treatments. He told us about the latest research into possible new treatments and explain four different new therapeutic approaches that are in the pipeline, which clinicians hope may help Graves’ patients in the future.
Simon is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at
Newcastle University. He is editor of the European Thyroid Association Journal and President of the British Thyroid Association.
This event was for anyone affected by thyroid disease, including friends, family and interested professionals.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating. The Thyroid Trust is a registered charity in England and Wales, number 1183292. We are entirely reliant on the generosity of our supporters to be able to continue.
Please book to attend this FREE event via Eventbrite and you will be sent the Zoom dial in details in advance. Let us know if you require some guidance notes regarding how to use the video conferencing application, Zoom.
Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place. The Thyroid Trust is a registered charity in England and Wales, number 1183292. We are entirely reliant on the generosity of our supporters to be able to continue.
Thyroid Patients' Quality of Life Measurement
Saturday 7/11/2020
11am - 12:30
FREE Online Event, Here is the event recording
Donations welcomed but entirely optional
As the developer of the widely used international scientific instrument for measuring impact of thyroid disorders on quality of life, the ThyPRO, Torquil Watt, presented the background for its development, how it was developed to reflect the experiences of patients and how it was scientifically validated.
He illustrated the use of ThyPRO in clinical research; how it can be applied and what it can provide us. He also spoke about his dreams for the future, including the development of a portal for scientifically sound patient-centered information about thyroid diseases, modules for self-monitoring, for patient-clinician communication tools and for patient empowerment interventions.
Torquil is an Endocrinologist and Associate Professor, PhD, DMSc, at the University of Copenhagen, Institute of Clinical Medicine. Learn more about this speaker.
The first half of the event was on the ThyPRO and after the break the discussion was on the patient-engagement portal, on which Torquil was very keen to receive input from attendees. The talk ran over slightly and we are now discussing how best to follow up on this discussion to give people more opportunity to ask questions and contribute ideas.
Questions and comments are welcomed. Please feel free to send any advance questions.
11am - 12:30
FREE Online Event, Here is the event recording
Donations welcomed but entirely optional
As the developer of the widely used international scientific instrument for measuring impact of thyroid disorders on quality of life, the ThyPRO, Torquil Watt, presented the background for its development, how it was developed to reflect the experiences of patients and how it was scientifically validated.
He illustrated the use of ThyPRO in clinical research; how it can be applied and what it can provide us. He also spoke about his dreams for the future, including the development of a portal for scientifically sound patient-centered information about thyroid diseases, modules for self-monitoring, for patient-clinician communication tools and for patient empowerment interventions.
Torquil is an Endocrinologist and Associate Professor, PhD, DMSc, at the University of Copenhagen, Institute of Clinical Medicine. Learn more about this speaker.
The first half of the event was on the ThyPRO and after the break the discussion was on the patient-engagement portal, on which Torquil was very keen to receive input from attendees. The talk ran over slightly and we are now discussing how best to follow up on this discussion to give people more opportunity to ask questions and contribute ideas.
Questions and comments are welcomed. Please feel free to send any advance questions.
Lessons learned from a patient...Saturday 12th September 2020
11am - 12:30pm FREE donations welcome but entirely optional Online Event. Here is the event recording Leading endocrinologist Professor Atul Kalhan FRCP MD, gave a talk and answered questions on lessons he has learned from a patient which a book can not teach. Professor Kalhan, shared what he has learned from treating a patient with a polyglandular autoimmune syndrome, over 10 years.
Professor Kalhan is a Consultant in Diabetes & Endocrinology at the Royal Glamorgan Hospital and Honorary Consultant Endocrinologist at University Hospital of Wales, Cardiff as well as Course Director for the PG Diploma and MSc in Endocrinology at University of South Wales. |
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Thyroid Cancer Cafe
26th September 2020
11am - 12:30pm
September is thyroid cancer awareness month. Bring your own coffee and join us in our first virtual 'thyroid cafe' to talk about your experiences with thyroid cancer, moderated by Judith Taylor who is herself a two-time thyroid cancer survivor.
Here are a few things we might talk about (but your ideas are more than welcome):
Everything you say at any of our thyroid cafe events will be confidential and the discussion will not be recorded or shared anywhere afterwards.
11am - 12:30pm
September is thyroid cancer awareness month. Bring your own coffee and join us in our first virtual 'thyroid cafe' to talk about your experiences with thyroid cancer, moderated by Judith Taylor who is herself a two-time thyroid cancer survivor.
Here are a few things we might talk about (but your ideas are more than welcome):
- When and how were you diagnosed?
- What information and support have you had during your thyroid cancer 'journey'? How could it be improved?
- Did you use the 'low iodine diet'? What was your experience?
- Did you have RAI? If so, were you given Thyrogen or did you follow the thyroxine 'withdrawal' method? How was your experience?
- Do you have any ongoing issues after your surgery?
Everything you say at any of our thyroid cafe events will be confidential and the discussion will not be recorded or shared anywhere afterwards.
Special Patients' Voice eventSaturday 29th August
11am - 12:30pm FREE donations welcome but entirely optional Online event - watch the recording online Jenny is a teacher, community artist, Member Pioneer at The Co-operative, Service User at Edgehill University and creator of CAN (Create Another Narrative) affirmation cards. |
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Having experienced a rare presentation and difficult journey to diagnosis with postpartum thyroiditis and on-going thyroiditis Jenny has become a master of the career ‘jigsaw’, bouncing back and managing life around symptoms with little support.
For three years following a diagnosis of Postpartum Thyroiditis Jenny’s symptoms cycled from explosive to subtly debilitating and back again but with a TSH often remaining in the ‘normal’ range Jenny met many dead ends in terms of care. Jenny shares with us how she overcame her lowest points, how she developed confidence in her voice and how affirmation helped her to really believe in the knowledge she had of her own body – changing her mindset and ultimately leading her to a life changing diagnosis and much needed support. CAN (create another narrative) affirmation cards are created as a result of Jenny’s own experiences, they aim to not only strengthen the patients voice but to raise awareness of the challenge’s faced when, like Jenny, illness does not fit the box. |
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International Thyroid Awareness Week
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Find out more about World Thyroid Day and the rest of the Week here. We'd love you to get involved next year!
With guest speaker, Dr Renée Hoenderkamp, who will gave a talk and answered questions on
Hypothyroidism from both ends of the Stethoscope
Hypothyroidism from both ends of the Stethoscope
Dr Renée is an NHS GP with, additionally, her own successful private aesthetic clinic. She is the resident GP for BBC Radio London, OK! Magazine and Express Newspapers as well as a blogger for GP magazine Pulse and regular medical vlogger. She has a keen personal interest in health and nutrition and strives to combine this with her approach to medicine.
She has personal experience, as a patient, with hypothyroidism and sat on the NICE Committee for the development of the new NICE guideline for thyroid disease assessment and management, where she was a strong advocate for access to more personalised approach to care, particularly for those patients who may not thrive on levothyroxine alone. She does not shy away from the sometimes controversial aspects of effective management of an underactive thyroid. We are delighted to have her as our speaker for this event.
We recorded this event and are working to make the footage available online and get all the outstanding questions answered, since we ran out of discussion time.
She has personal experience, as a patient, with hypothyroidism and sat on the NICE Committee for the development of the new NICE guideline for thyroid disease assessment and management, where she was a strong advocate for access to more personalised approach to care, particularly for those patients who may not thrive on levothyroxine alone. She does not shy away from the sometimes controversial aspects of effective management of an underactive thyroid. We are delighted to have her as our speaker for this event.
We recorded this event and are working to make the footage available online and get all the outstanding questions answered, since we ran out of discussion time.
28th March 2020
11am - 12:30pm
Online Learning Event
Watch the video recordings of the three talks at this event on The Thyroid Trust Youtube Channel.
11am - 12:30pm
Online Learning Event
Watch the video recordings of the three talks at this event on The Thyroid Trust Youtube Channel.
Evidence and Patient Advocacy, with guest speakers Dr Brooke Lumisci and Hannah West.
How to tell when information about your condition is reliable and how to use reliable information and guidelines to access the best standard of care for your thyroid condition.
This event included a discussion of The Thyroid Trust's advocacy work and how we are working with partners to make things better for thyroid patients.
How to tell when information about your condition is reliable and how to use reliable information and guidelines to access the best standard of care for your thyroid condition.
This event included a discussion of The Thyroid Trust's advocacy work and how we are working with partners to make things better for thyroid patients.
Brooke is an Ask for Evidence Ambassador for the charity Sense About Science. Ask for Evidence is a public campaign that helps you to ask for the evidence behind health claims, news stories, ads and policies. Providing support to show you how to ask the right questions and how to understand different types of evidence. They’re here to help every step of the way – they can help you find the right person to ask; give you tips on questions to ask and how to spot good evidence; and help you to make sense of the answer you receive.
Following a career in academic medical research culminating in a PhD in cancer biology and diagnostics Brooke is now an evidence analyst at the MS Society. The evidence team generate and scrutinise evidence and knowledge to support the policy, influencing and strategy across the organisation. Brooke believes it's important that we as a community demand that science is communicated truthfully and accessibly. This will help all those who would like to be involved in translating findings into impactful, real world outcomes to join the conversation.
Hannah is senior campaigns officer at the MS Society and is experienced in running healthcare campaigns, communications, policy and safety.
This event was for anyone affected by thyroid disease, including friends, family and interested professionals.
We do not charge for our events but would be grateful if you would consider making a donation of £5 to help us cover our costs, if you are able to. Any donation amount will be very welcome!
Following a career in academic medical research culminating in a PhD in cancer biology and diagnostics Brooke is now an evidence analyst at the MS Society. The evidence team generate and scrutinise evidence and knowledge to support the policy, influencing and strategy across the organisation. Brooke believes it's important that we as a community demand that science is communicated truthfully and accessibly. This will help all those who would like to be involved in translating findings into impactful, real world outcomes to join the conversation.
Hannah is senior campaigns officer at the MS Society and is experienced in running healthcare campaigns, communications, policy and safety.
This event was for anyone affected by thyroid disease, including friends, family and interested professionals.
We do not charge for our events but would be grateful if you would consider making a donation of £5 to help us cover our costs, if you are able to. Any donation amount will be very welcome!
Saturday 25th January 2020
11am - 2pm
At Palestra, 197 Blackfriars Road, Southwark, London, SE1 8NJ
Dr Kristien Boelaert MD, PhD, MRCP will a talk and answer questions on: "An Overview of the new NICE Guidelines on the Management of Thyroid Diseases"
FREE
Please book to attend via Eventbrite.
11am - 2pm
At Palestra, 197 Blackfriars Road, Southwark, London, SE1 8NJ
Dr Kristien Boelaert MD, PhD, MRCP will a talk and answer questions on: "An Overview of the new NICE Guidelines on the Management of Thyroid Diseases"
FREE
Please book to attend via Eventbrite.
This event is for anyone affected by thyroid disease, including friends, family and interested professionals.
The programme will include plenty of time for questions and networking. Refreshments will be provided.
Kristien is a Consultant Endocrinologist, University Hospital Birmingham (UHB) NHS FoundationTrust and
Clinical Governance Lead for Endocrinology within UHB NHS FT as well as a Senior MRC-funded Research Fellow and practising Consultant Endocrinologist with lead roles in the Thyroid Services at the UHB NHS Foundation Trust. She sits on the committee for the development of the new NICE Guidelines on the Management of Thyroid Diseases which are due to be published in November 2019.... more
Palestra, map. Nearest Tube Southwark.
Saturday 5th December 2019
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Come along for an informal catch up if you are free!
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Come along for an informal catch up if you are free!
Saturday November 23rd 2019
11am - 2pm
At Crown Court Church, Russell Street, Covent Garden, WC2B 5EZ
11am - 2pm
At Crown Court Church, Russell Street, Covent Garden, WC2B 5EZ
Professor Margaret Rayman and Dr Sarah Bath gave a talk on Nutrition and Thyroid Disease: The importance of iodine, iron and selenium to thyroid function.
Margaret is Professor of Nutritional Medicine at the University of Surrey where, in 1998, she set up, and now directs, the highly respected MSc Programme in Nutritional Medicine. Her research, which includes a number of randomised controlled trials, centres on the importance of trace elements to human health.
Margaret is Professor of Nutritional Medicine at the University of Surrey where, in 1998, she set up, and now directs, the highly respected MSc Programme in Nutritional Medicine. Her research, which includes a number of randomised controlled trials, centres on the importance of trace elements to human health.
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Sarah is a Lecturer in Public Health Nutrition at the University of Surrey and her research is focused on iodine deficiency in the UK. She previously held a Medical Research Council (MRC) Population Health Scientist Fellowship, which helped to develop her work on iodine. She is currently on the committee of the UK Iodine Group, and on the Scientific Advisory Board of the World Iodine Association (WIA) as well as the committee of the Nutrition Society Training Academy.
Please note that Margaret and Sarah are not clinicians and cannot give medical advice - and it is always the case that the speakers at our events are unable to give individuals medical advice.
Please note that Margaret and Sarah are not clinicians and cannot give medical advice - and it is always the case that the speakers at our events are unable to give individuals medical advice.
Crown Court Church in Covent Garden:
Saturday 19th October 2019
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Just come along.
1:30pm-2pm
At: The Wellcome Trust Cafe in Euston Road.
Team Building discussion, facilitated by Kelly Southcott, for all those interested in helping The Thyroid Trust to grow and do more to make things better for thyroid patients.
Please book to attend this discussion, via Eventbrite.
11am - 12pm
Informal Get Together
At: The Wellcome Trust Cafe in Euston Road.
Hosted by Theresa Baker (pictured above on the right hand side)
Just come along.
1:30pm-2pm
At: The Wellcome Trust Cafe in Euston Road.
Team Building discussion, facilitated by Kelly Southcott, for all those interested in helping The Thyroid Trust to grow and do more to make things better for thyroid patients.
Please book to attend this discussion, via Eventbrite.
Saturday 14th September 2019
11am - 2pm
At Palestra, Southwark, London, SE1 8NJ
view map
FREE
Expert Health coach, Barbara Babcock, will deliver an Introduction to Health Coaching.
Read more...
11am - 2pm
At Palestra, Southwark, London, SE1 8NJ
view map
FREE
Expert Health coach, Barbara Babcock, will deliver an Introduction to Health Coaching.
Read more...
Summer Social 2019
Saturday 17th August - Seaside Walk from Broadstairs to Ramsgate...
Thanks to everyone who joined us on this walk and all the friends and family who kindly sponsored the walkers, we were thrilled with the support!
More information here.
See the Gallery for photos of this and our previous social events.
Saturday 17th August - Seaside Walk from Broadstairs to Ramsgate...
Thanks to everyone who joined us on this walk and all the friends and family who kindly sponsored the walkers, we were thrilled with the support!
More information here.
See the Gallery for photos of this and our previous social events.
Saturday 8th June 2019
11am-1pm
At: The Crick Institute Cafe in St Pancras, 1 Midland Road.
We had an informal Learning and Growing discussion, for those interested in helping The Thyroid Trust develop our advocacy, information sharing and awareness work.
11am-1pm
At: The Crick Institute Cafe in St Pancras, 1 Midland Road.
We had an informal Learning and Growing discussion, for those interested in helping The Thyroid Trust develop our advocacy, information sharing and awareness work.
Saturday 25th May 2019
11am - 12pm
Theresa Baker hosted an informal get together on World Thyroid Day
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
11am - 12pm
Theresa Baker hosted an informal get together on World Thyroid Day
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
Saturday 13th April 2019
11am - 2pm
At: Crown Court Church, Russell Street, London WC2B 5EZ.
See the event recording here
Consultant Physician and Endocrinologist, Dr Paul Jenkins MA BChir MD FRCP, recently appointed Trustee of The Thyroid Trust, gave a talk on Optimising Treatment for Hypothyroidism
Here is the poster for this event and details on Facebook.
We love it when supporters help us spread the word!
Please get in touch if you'd like to help with future events.
11am - 2pm
At: Crown Court Church, Russell Street, London WC2B 5EZ.
See the event recording here
Consultant Physician and Endocrinologist, Dr Paul Jenkins MA BChir MD FRCP, recently appointed Trustee of The Thyroid Trust, gave a talk on Optimising Treatment for Hypothyroidism
Here is the poster for this event and details on Facebook.
We love it when supporters help us spread the word!
Please get in touch if you'd like to help with future events.
Saturday 16th March 2019
11am - 12pm
Theresa Baker hosted an informal get together
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
11am - 12pm
Theresa Baker hosted an informal get together
At: the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station.
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year.
Saturday 26th January
11am - 2pm
Self Care and Partnerships, Thyroid Patients' Voices Event
At: Crown Court Church, Russell Street, London WC2B 5EZ.
11am - 2pm
Self Care and Partnerships, Thyroid Patients' Voices Event
At: Crown Court Church, Russell Street, London WC2B 5EZ.
Dr Anthony Toft
24 November 2018
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism
See the recording of the event here
The talk was so popular it even developed its own hashtag on social media! #ToftTalk.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism
See the recording of the event here
The talk was so popular it even developed its own hashtag on social media! #ToftTalk.
Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.
Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.
22 Sept 2018
11am - 2pm
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB
Consultant Endocrine Surgeon And Trustee of The Thyroid Trust, Professor Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.
Our excellent friends at Mayflower Films kindly filmed the talk,watch it on our Information Videos page.
11am - 2pm
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB
Consultant Endocrine Surgeon And Trustee of The Thyroid Trust, Professor Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.
Our excellent friends at Mayflower Films kindly filmed the talk,watch it on our Information Videos page.
Click here to see pictures from some of our previous events including our 2017 Summer Seaside Walk and 2018 Summer Social event at Sky Garden London.
Wednesday 27th June 2018
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings.
Details on Facebook - if you would be interested in an East Kent group you can comment on the FB event, or email us.
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings.
Details on Facebook - if you would be interested in an East Kent group you can comment on the FB event, or email us.
19 May 2018
11am - 2pm
Patients Voices event on the theme of monitoring and tracking our health
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Posters for this event can be downloaded here, please let us know if you would like to help distribute posters for this event. Thank you!
To get more information on the programme, please click here.
11am - 2pm
Patients Voices event on the theme of monitoring and tracking our health
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Posters for this event can be downloaded here, please let us know if you would like to help distribute posters for this event. Thank you!
To get more information on the programme, please click here.
24 March 2018
Public and Patient Involvement in Research
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.
Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.
Public and Patient Involvement in Research
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.
Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.
20 January 2018, Mental Health and Thyroid Disease
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way.
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress.
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way.
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress.
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25th November 2017, Patients Voices Winter Warmer event
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ This event was on the theme of Self Care, with guest speaker Michele Varchione who has hypothyroidism and shared some gentle chair based yoga exercises we could all join in with as well as some great insights on self care. We also enjoyed a very interesting short talk from group member and artist Peter Esslemont, about his journey with thyroid cancer. There are some fun photos in the gallery of this meeting. Michelle teaches mainly in Clapham junction and in Sheen. Let her know you are from The Thyroid Trust if enquiring about classes with her. www.kulawellbeing.co.uk http://yogahub.london/ You might like to follow Michelle on Instagram. Her posts are very inspiring. @ShalaTeacher. |
23rd September 2017, 11am - 2pm, London Meeting,
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event. Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report.
At: Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event. Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report.
8th July 2017, 11am - 2pm, London Meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ. See report.
3rd June 2017, we walked from Broadstairs to Ramsgate on the east Kent coast, to raise awareness of thyroid disease and have a nice day out together. See report.
13th May 2017, 11am - 2pm, London meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ
for everyone affected by thyroid diseaseMeetingsWe organise regular information and support meetings online and in person.
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Correspondence ADDRESS15 Great College Street, London, SW1P 3RX
The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292 Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. Read our Privacy Policy updated 23/5/18, . |
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