Upcoming meeting dates

​Getting the best treatment for hypothyroidism - Part Two

Wednesday 15th September 2021
6pm - 7:30pm
This event will take place on Zoom
Book via Eventbrite 

Hypothyroidism is a chronic lifelong condition which should be easy to treat. However, not everybody who takes thyroid hormone replacement treatment feels fully back to normal. Part 2 of this talk will continue to explore the complex evidence concerning wellbeing, hypothyroidism and thyroid hormone replacements. Our speaker Simon Pearce is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at Newcastle University. He is editor of the European Thyroid Association Journal and President of the British Thyroid Association.

Please book to attend this FREE event via Eventbrite and you will be sent the Zoom dial in details in advance.

Here is the video recording of Part One and the outstanding Q&As from that session which Simon kindly answered in writing after his talk.  We suggest you watch the video before attending Part Two. 
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Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.

Thyroid Cancer Cafe

Saturday 18th September 2021
11am - 12:30pm
This event will take place on Zoom
Please book via Eventbrite

September is thyroid cancer awareness month. Bring your own coffee and join us in our virtual 'thyroid cafe' to talk about your experiences with thyroid cancer, moderated by Judith Taylor who is herself a two-time thyroid cancer survivor. Here are a few things we might talk about (but your ideas are more than welcome):

• When and how were you diagnosed?
• What information and support have you had during your thyroid cancer 'journey'? How could it be improved?
• Did you use the 'low iodine diet'? What was your experience?
• Did you have RAI? If so, were you given Thyrogen or did you follow the thyroxine 'withdrawal' method? How was your experience?
• Do you have any ongoing issues after your surgery?
• We might also talk about returning to work and financial/economic issues, sometimes known as 'the right to be forgotten'.

Everything you say will be confidential and the discussion will not be recorded or shared anywhere afterwards.

Find our more about thyroid cancer awareness month. 

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Zoom Guidance

If you need help with using Zoom to access our online meetings we  have prepared a short guide you can download below:

Zoom Guidance

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​Events by other organisations

To find out about further events that may be of interest,
​arranged by other organisations we endorse, click here. 

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​Previous meetings

Thyroid Cafe - Let the sun shine in with Karen George

Saturday 7th August 2021
11am - 12:30pm
This event will take place on Zoom
​Book via Eventbrite 

The past 12-18 months have been incredibly difficult for everyone. For some of us living with a thyroid condition, life has been more challenging than ever. Trying to keep ourselves safe and virus-free whilst also managing our thyroid conditions has inevitably lead to some people feeling isolated, anxious and alone. 

The Thyroid Trust was created so that no-one ever feels alone with thyroid disease. 

With summer on its way and the hope of brighter days ahead we want to help banish the darkness and put the sunshine back into your life. So join us for our next Thyroid Cafe and “let the sunshine in”.  

The cafe will be held over Zoom and moderated by Karen George, who has lived experience of Graves’ Disease and is a founding Trustee of The Thyroid Trust. Bring your own coffee!  

Numbers for this event will be limited to ensure that all who attend can participate in the discussion.

We are reliant on donations to be able to continue our vital work, supporting, informing and advocating for thyroid patients. If you are able to, please donate what you might have spent if this meeting was taking place in a real live cafe, instead of online!  If money is tight for you though, don't worry, we still want you to come along - donations are entirely at your discretion, but please be generous if you can. 
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​Getting the best treatment for hypothyroidism - Part One

Wednesday 7th July
6pm - 7:30pm
This event took place on Zoom
Watch the recording
Read the outstanding Q&As document from the chat, which Simon very kindly completed after the event
Booking link www.eventbrite.co.uk/e/getting-the-best-treatment-for-hypothyroidism-tickets-158625656609

Hypothyroidism is a chronic lifelong condition which should be easy to treat. However, not everybody who takes thyroid hormone replacement treatment feels fully back to normal. This talk will explore the complex evidence concerning wellbeing, hypothyroidism and thyroid hormone replacements.   Our speaker Simon Pearce is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at Newcastle University. He is editor of the European Thyroid
Association Journal and President of the British Thyroid Association.

Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.

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IMSR Festival: The Power of the Patient Voice

19th June
11am - 12pm
Online event
Book via Eventbrite

Patients have an important role to play in advocating for research related to the health conditions we experience.  This event is an opportunity to discuss the opportunities and challenges around doing this and to learn from other organisations representing different patient groups, AMEND and Verity, with clinicians and researchers at the Institute of Metabolism & Systems Research (IMSR),  University of Birmingham. Our Director, Lorraine Williams, is one of the speakers, along with artist Vicky Roden who has hyperthyroidism and has worked with the scientists at IMSR on a project designed to improve treatment for Graves patients. ​

​All welcome 

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Creative Thyroid Cafe

7th June 2021
11am - 12.30pm
On Zoom 
​Book via Eventbrite 

​Join artist Vicky Roden and friends, to talk about creative artistic expression inspired by our thyroid conditions.
​
If you have artworks you'd like to share please bring them to show - we'd love to see them! We might even read some of the poems from Fahmidan Journal’s special issue published on World Thyroid Day. We will limit numbers for this event to ensure everyone is able to join in with the discussion.

As an artist with lived experience of hyperthyroidism, Vicky has worked collaboratively with The Centre for Systems Modelling & Quantitative Biomedicine (SMQB) at the University of Birmingham,  on an innovative creative collaboration at the interface between art, mathematics, biology & healthcare.

Vicky's practice encompasses a variety of media including textiles, embroidery, taxidermy and Live Art. Her work explores death, ritual, and points where women have historically found personal power and agency. As a former Hyperthyroid patient, with researchers at the SMQB working mathematical modelling with software, imaging and experimental data to create new clinical diagnostics for thyroid patients.

For World Thyroid Day Vicky is also producing a fun prerecorded video creative workshop, demonstrating how to make fondant thyroids - so look out for that too!

Please book to attend this FREE event via Eventbrite  and you will be sent the Zoom dial in details in advance.
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Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place.

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Levothyroxine treatment and cholesterol in hypothyroidism

26th May 2021
6pm - 7:30pm
On Zoom
book Via Eventbrite

Dr Pete Taylor FRCP MSc PhD kindly gave a talk and answered questions on an important new study he recently completed, with his colleague A C Bianco, which was published in Nature Review Endocrinology* at the beginning of 2020, levothyroxine treatment and cholesterol in hypothyroidism.  This event will take place during International Thyroid Awareness Week, immediately following World Thyroid Day.

Pete is a Clinical Senior Lecturer and  Consultant Endocrinologist in the Thyroid Research Group at Cardiff University and is widely published and regularly talks on different aspects of thyroid disease, including the use of T3 to treat hypothyroidism. 
*Bianco, A.C., Taylor, P. Levothyroxine treatment and cholesterol in hypothyroidism. Nat Rev Endocrinol 16, 193–194 (2020). https://doi.org/10.1038/s41574-020-0323-2

We recorded Pete's talk and will make it available online shortly. 

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Thyroid Cafe - to help plan for International Thyroid Awareness Week 2021

26th March
11am - 12:30pm
Online Event
Book your place via Eventbrite 

International Thyroid Awareness Week is 25-31 May 2021 - with World Thyroid Day at the start.

We're holding an informal online Thyroid Cafe event for everyone interested in helping come up with ideas and get involved in activities for the week, to make the most of this opportunity

We'd love to see you and hear your ideas of things we can do together, and as individuals, during that week. We want to raise awareness of thyroid disease and also encourage people to do some fundraising to support our work: to make things better for thyroid patients in the UK.

We are a tiny charity and still very new, but we have big ambitions and we need to grow to be able to achieve more in the future.
Can you help? Would you like to be part of the conversation?

We'll kick off at 11am on Zoom, bring your own "elevenses".

Register using the Eventbrite link above and you'll be sent the Zoom link and dial in details.

We'll start by sharing what we did last year and our initial outline plans for 2021, then we want to hear any new ideas that anyone might have, to make more impact, reach more people and make more of a difference. If you want to commit to being involved and saying what you can do, or let us know what help you might need to realise any plans you might have, we'll be thrilled and hope we can work with you!

​The more of us who take action and support each other, the more of an impact we can make, together

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​New Research into Thyroid Hormone Function in Covid19 Patients

Saturday 6th February 2021
11am - 12:30pm
FREE Online Event on Zoom
Donations welcome but entirely optional 

​Learn about new research into thyroid hormone function in Covid19 patients with The Thyroid Trust and Dr Bernard Khoo.

The subject of this webinar will be new research into thyroid hormone function in Covid19 patients, published by Dr Bernard Khoo and colleagues.

Dr Khoo, who is a senior clinical lecturer in endocrinology at the Royal Free Hospital in London, has kindly agreed to give a talk and answer questions on this study.

Dr Khoo trained at the University of Cambridge. Specialist accreditation in Endocrinology and Diabetes at St Bartholomew’s, with Wellcome Trust Advanced Fellowship from 2003-2006. Since 2009, he has been Senior Clinical Lecturer in Endocrinology at UCL Medical School.

HIs specialist interests are in treatment of neuroendocrine tumours, as well as genetic endocrine disorders. He is the endocrinologist for the Royal Free Neuroendocrine Tumour Multidisciplinary Team.

This event is for anyone affected by thyroid disease, including friends, family and interested professionals.

There will be a 5 minute comfort break around the halfway point.

Questions and comments are welcomed. Please feel free to send any advance questions.

Please book to attend this FREE event via Eventbrite and you will be sent the Zoom dial in details in advance.

Here are some guidance notes regarding how to use the video conferencing application, Zoom if you need help with this.

Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place. 

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​New Therapeutic Horizons for Graves' Hyperthyroidism

Wednesday 2nd December 2020
6pm - 7:30pm
FREE Online Event
Donations welcome but entirely optional 

Treatments for Graves' Hyperthyroidism have remained largely unchanged for 70 yrs and sometimes don't work, or can lead to lifelong treatment for hypothyroidism, but now exciting new options are being investigated.

Simon Pearce, gave a talk and answer questions on what causes Graves’ disease and outline  the existing conventional treatments. He told us about the latest research into possible new treatments and explain four different new therapeutic approaches that are in the pipeline, which clinicians hope may help Graves’ patients in the future.

Simon is Professor of Endocrinology at the Translational & Clinical Research Institute, Faculty of Medical Sciences at 
Newcastle University. He is editor of the European Thyroid Association Journal and President of the British Thyroid Association.

This event was for anyone affected by thyroid disease, including friends, family and interested professionals.

Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating.  The Thyroid Trust is a registered charity in England and Wales, number 1183292. We are entirely reliant on the generosity of our supporters to be able to continue.  ​

Please book to attend this FREE event via Eventbrite and you will be sent the Zoom dial in details in advance.  Let us know if you require some guidance notes regarding how to use the video conferencing application, Zoom.

Our events are free to attend but we welcome donations, if you are in a position to support our work and would like to do so please consider donating when you book your place. The Thyroid Trust is a registered charity in England and Wales, number 1183292. We are entirely reliant on the generosity of our supporters to be able to continue.  ​

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Thyroid Patients' Quality of Life Measurement

Saturday 7/11/2020
11am - 12:30 
FREE Online Event

Donations welcomed but entirely optional 

As the developer of the widely used international scientific instrument for measuring impact of thyroid disorders on quality of life, the ThyPRO,  Torquil Watt, presented the background for its development, how it was developed to reflect the experiences of patients and how it was scientifically validated.

He illustrated the use of ThyPRO in clinical research; how it can be applied and what it can provide us. He also spoke about his dreams for the future, including the development of a portal for scientifically sound patient-centered information about thyroid diseases, modules for self-monitoring, for patient-clinician communication tools and for patient empowerment interventions.

Torquil is an Endocrinologist and Associate Professor, PhD, DMSc, at the University of Copenhagen, Institute of Clinical Medicine. Learn more about this speaker. 

The first half of the event was on the ThyPRO and after the break the discussion was on the patient-engagement portal, on which Torquil was very keen to receive input from attendees.  The talk ran over slightly and we are now discussing how best to follow up on this discussion to give people more opportunity to ask questions and contribute ideas. 

Questions and comments are welcomed.  Please feel free to send any advance questions.

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Lessons learned from a patient...

Saturday 12th September 2020
​11am - 12:30pm 
FREE
donations welcome but entirely optional 
Online Event  - video to follow

​Leading endocrinologist Professor Atul Kalhan FRCP MD, gave a talk and answered questions on lessons he has learned from a patient which a book can not teach.

Professor Kalhan, shared what he has learned from treating a patient with a polyglandular autoimmune syndrome, over 10 years.  
Professor Kalhan is a Consultant in Diabetes & Endocrinology at the Royal Glamorgan Hospital and Honorary Consultant Endocrinologist at University Hospital of Wales, Cardiff  as well as Course Director for the PG Diploma and MSc in Endocrinology at University of South Wales.

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Thyroid Cancer Cafe

26th September 2020
11am - 12:30pm

September is thyroid cancer awareness month. Bring your own coffee and join us in our first virtual 'thyroid cafe' to talk about your experiences with thyroid cancer, moderated by Judith Taylor who is herself a two-time thyroid cancer survivor.

Here are a few things we might talk about (but your ideas are more than welcome):

• When and how were you diagnosed?
• What information and support have you had during your thyroid cancer 'journey'? How could it be improved?
• Did you use the 'low iodine diet'? What was your experience?
• Did you have RAI? If so, were you given Thyrogen or did you follow the thyroxine 'withdrawal' method? How was your experience?
• Do you have any ongoing issues after your surgery?

We might also talk about returning to work and financial/economic issues, sometimes known as 'the right to be forgotten'.

​Everything you say at any of our thyroid cafe events will be confidential and the discussion will not be recorded or shared anywhere afterwards.

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Special Patients' Voice event  

Saturday 29th August
11am - 12:30pm
FREE
donations welcome but entirely optional
Online event - book your place via Eventbrite 

​Jenny is a teacher, community artist, Member Pioneer at The Co-operative, Service User at Edgehill University and creator of CAN (Create Another Narrative) affirmation cards.

Having experienced a rare presentation and difficult journey to diagnosis with postpartum thyroiditis and on-going thyroiditis Jenny has become a master of the career ‘jigsaw’, bouncing back and managing life around symptoms with little support. 
For three years following a diagnosis of Postpartum Thyroiditis Jenny’s symptoms cycled from explosive to subtly debilitating and back again but with a TSH often remaining in the ‘normal’ range Jenny met many dead ends in terms of care.
Jenny shares with us how she overcame her lowest points, how she developed confidence in her voice and how affirmation helped her to really believe in the knowledge she had of her own body – changing her mindset and ultimately leading her to a life changing diagnosis and much needed support.  
CAN (create another narrative) affirmation cards are created as a result of Jenny’s own experiences, they aim to not only strengthen the patients voice but to raise awareness of the challenge’s faced when, like Jenny, illness does not fit the box. 

Find out more about the cards and how to download free copies from Jenny's blog. 

International Thyroid Awareness Week
​25th - 31st May 2020

Special Self Care Session
​with Michelle Varchione

28th May 2020
2pm - 3:30pm 
FREE
donations welcome but entirely optional
​Get more details and book your place via Eventbrite

Find out more about World Thyroid Day and the rest of the Week here. We'd love you to get involved next year! 

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16th May 2020
11am - 12:30pm 
​Online Information Event

With guest speaker, Dr Renée Hoenderkamp, who will gave a talk and answered questions on 
Hypothyroidism from both ends of the Stethoscope

​Dr Renée is an NHS GP with, additionally, her own successful private aesthetic clinic. She is the resident GP for BBC Radio London, OK! Magazine and Express Newspapers as well as  a blogger for GP magazine Pulse and regular medical vlogger. She has a keen personal interest in health and nutrition and strives to combine this with her approach to medicine. 
She has personal experience, as a patient, with hypothyroidism and sat on the NICE Committee for the development of the new NICE guideline for thyroid disease assessment and management, where she was a strong advocate for access to more personalised approach to care, particularly for those patients who may not thrive on levothyroxine alone. She does not shy away from the sometimes controversial aspects of effective management of an underactive thyroid. We are delighted to have her as our speaker for this event. 

We recorded this event and are working to make the footage available online and get all the outstanding questions answered, since we ran out of discussion time. 

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28th March 2020
11am - 12:30pm
Online Learning Event
Watch the video recordings of the three talks at this event on The Thyroid Trust Youtube Channel. 

Evidence and Patient Advocacy, with guest speakers Dr Brooke Lumisci and Hannah West.

​How to tell when information about your condition is reliable and how to use reliable information and guidelines to access the best standard of care for your thyroid condition.

​This event included a discussion of The Thyroid Trust's advocacy work and how we are working with partners to make things better for thyroid patients.

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Brooke is an Ask for Evidence Ambassador for the charity Sense About Science. Ask for Evidence is a public campaign that helps you to ask for the evidence behind health claims, news stories, ads and policies. Providing support to show you how to ask the right questions and how to understand different types of evidence. They’re here to help every step of the way – they can help you find the right person to ask; give you tips on questions to ask and how to spot good evidence; and help you to make sense of the answer you receive. 

Following a career in academic medical research culminating in a PhD in cancer biology and diagnostics Brooke is now an evidence analyst at the MS Society. The evidence team generate and scrutinise evidence and knowledge to support the policy, influencing and strategy across the organisation.  Brooke believes it's important that we as a community demand that science is communicated truthfully and accessibly. This will help all those who would like to be involved in translating findings into impactful, real world outcomes to join the conversation.

Hannah  is senior campaigns officer at the MS Society and is experienced in running healthcare campaigns, communications, policy and safety. 

This event was for anyone affected by thyroid disease, including friends, family and interested professionals. 

We do not charge for our events but would be grateful if you would consider making a donation of £5 to help us cover our costs, if you are able to.  Any donation amount will be very welcome!

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Saturday 25th January 2020 
11am - 2pm
​At Palestra, 197 Blackfriars Road, Southwark, London, SE1 8NJ​

​Dr Kristien Boelaert MD, PhD, MRCP will a talk and answer questions on: "An Overview of the new NICE Guidelines on the Management of Thyroid Diseases"
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FREE 
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Please book to attend via Eventbrite. 

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This event is for anyone affected by thyroid disease, including friends, family and interested professionals. 

The programme will include plenty of time for questions and networking. Refreshments will be provided. ​

​Kristien is a Consultant Endocrinologist, University Hospital Birmingham (UHB) NHS FoundationTrust and 
Clinical Governance Lead for Endocrinology within UHB NHS FT as well as a Senior MRC-funded Research Fellow and practising Consultant Endocrinologist with lead roles in the Thyroid Services at the UHB NHS Foundation Trust. She sits on the committee for the development of the new NICE Guidelines on the Management of Thyroid Diseases which are due to be published in November 2019.... more 

Palestra, map. Nearest Tube Southwark. 

Saturday 5th December 2019
11am - 12pm
Informal Get Together 
At: The Wellcome Trust Cafe in Euston Road. 
Hosted by Theresa Baker (pictured above on the right hand side)
Come along for an informal catch up if you are free! ​

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Saturday November 23rd 2019
11am - 2pm
​At Crown Court Church, Russell Street, Covent Garden, WC2B 5EZ

​Professor Margaret Rayman and Dr Sarah Bath gave a talk on Nutrition and Thyroid Disease: The importance of iodine, iron and selenium to thyroid function. ​

​Margaret is Professor of Nutritional Medicine at the University of Surrey where, in 1998, she set up, and now directs, the highly respected MSc Programme in Nutritional Medicine. Her research, which includes a number of randomised controlled trials, centres on the importance of trace elements to human health. 

​Sarah is a Lecturer in Public Health Nutrition at the University of Surrey and her research is focused on iodine deficiency in the UK. She previously held a Medical Research Council (MRC) Population Health Scientist Fellowship, which helped to develop her work on iodine. She is currently on the committee of the UK Iodine Group, and on the Scientific Advisory Board of the World Iodine Association (WIA) as well as the committee of the Nutrition Society Training Academy.
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Please note that Margaret and Sarah are not clinicians and cannot give medical advice - and it is always the case that the speakers at our events are unable to give individuals medical advice.

Crown Court Church in Covent Garden: 

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Saturday 19th October 2019
11am - 12pm
Informal Get Together 
At: The Wellcome Trust Cafe in Euston Road. 
Hosted by Theresa Baker (pictured above on the right hand side)
Just come along. 

1:30pm-2pm  
At: ​ The Wellcome Trust Cafe in Euston Road.
Team Building discussion, facilitated by Kelly Southcott, for all those interested in helping The Thyroid Trust to grow and do more to make things better for thyroid patients. 
Please book to attend this discussion, via Eventbrite. 

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Saturday 14th September 2019
11am - 2pm
​At Palestra, Southwark, London, SE1 8NJ​
​view map
​FREE
Expert Health coach, Barbara Babcock, will deliver an Introduction to Health Coaching. 

​Read more... 

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Summer Social 2019

Saturday 17th August - Seaside Walk from Broadstairs to Ramsgate...
Thanks to everyone who joined us on this walk and all the friends and family who kindly sponsored the walkers, we were thrilled with the support! 

​More information here. 

See the Gallery for photos of this and our previous social events. ​

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Saturday 8th June 2019
11am-1pm  
At: ​ The Crick Institute Cafe in St Pancras, 1 Midland Road. 

We had an informal Learning and Growing discussion, for those interested in helping The Thyroid Trust develop our advocacy, information sharing and awareness work.​

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Saturday 25th May 2019 
11am - 12pm
Theresa Baker hosted an informal get together on World Thyroid Day
At:  the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station. 
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year. 

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​Saturday 13th April 2019
11am - 2pm
​At: Crown Court Church, Russell Street, London WC2B 5EZ.

Consultant Physician and Endocrinologist, Dr Paul Jenkins MA BChir MD FRCP, recently appointed Trustee of The Thyroid Trust, gave a talk on Optimising Treatment for Hypothyroidism
​
Here is the poster for this event and details on Facebook. 
We love it when supporters help us spread the word! 
Please get in touch if you'd like to help with future events. 

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Saturday 16th March 2019
11am - 12pm
Theresa Baker hosted an informal get together 
At:  the Wellcome Trust ground floor cafe on Euston Road, opposite Euston Station. 
Find out more on our Facebook page and please email Theresa if you plan to attend. We aren't expecting lots of people but wanted to give our Thyroid Friends a chance to catch up for some informal peer support between our scheduled events. We plan to do more of these kinds of get togethers later in the year. 

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Saturday 26th January
11am - 2pm
Self Care and Partnerships, Thyroid Patients' Voices Event
At: Crown Court Church, Russell Street, London WC2B 5EZ.

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Dr Anthony Toft

24 November 2018
11am - 2pm
Consultant Physician, Dr Anthony Toft, gave a talk on The Management of Hypothyroidism

​This event was recorded, see the film on our Information Videos page.  The talk was so popular it even developed its own hashtag on social media! #ToftTalk. 

Dr Toft kindly followed up with the following research references to studies mentioned in his talk and has agreed to become an Honorary Trustee of The Thyroid Trust.

Jonklaas J, et al 2018 Physician choice of hypothyroidism therapy: influence of patient characteristics. Thyroid 28: 1416-1424.
Peterson AJ, et al 2018 An online survey of hypothyroid patients demonstrates prominent dissatisfaction. Thyroid 28: 707-721.

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22 Sept 2018
11am - 2pm 
Information and Support Meeting
At St Pancras Community Association, Main Hall, 67 Plender Street, NW1 0LB 

Consultant Endocrine Surgeon And Trustee of The Thyroid Trust, Professor Fausto Palazzo, gave a fascinating talk on The Evolution of Thyroid Surgery and answered questions on all aspects of thyroid disease.

Our excellent friends at Mayflower Films kindly filmed the talk,watch it on our Information Videos page.

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Click here to see pictures from some of our previous events including our 2017 Summer Seaside Walk and 2018 Summer Social event at Sky Garden London.  

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Wednesday 27th June 2018
11am - midday
Seaside Debrief on HoL debate
Royal Albion Hotel, Broadstairs, Kent
We held an informal get together for members and supporters based in East Kent, in the garden at Royal Albion Hotel in Broadstairs, (or indoors if it's wet or chilly), to debrief on the House of Lords debate on liothyronine and BBC South East and BBC Radio Kent coverage of the #andmeT3 project as well as to generally chat about all things thyroid. As a result of this meeting we hope to launch an East Kent group later this year as a volunteer has indicated interest in coordinating further meetings. 
Details on Facebook - if you would be interested in an East Kent group you can comment on the  FB event, or email us. 

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19 May 2018
11am - 2pm
​
Patients Voices event on the theme of  monitoring and tracking our health
At:  Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ 

​​Posters for this event can be downloaded here,  please let us know if you would like to help distribute posters for this event. Thank you!

To get more information on the programme, please click here.

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24 March 2018
Public and Patient Involvement in Research
At:  Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ 
Sanjana Balu gave a talk entitled 'Involve the public and involve them early' about how the public can help shape how medical research plans and policies are communicated and how early career scientists are increasingly being encouraged and enabled to listen to patient voices.​
​Sanjana joined the Sense about Science team as the events and public engagement coordinator in November 2017. She is responsible for delivering the events and public engagement programme, including the Voice of Young Science (VoYS) workshops and the annual John Maddox Prize evening. Prior to joining Sense about Science she worked at Cancer Research UK in a variety of roles in their Policy & Information department. She also holds a BSc in biomedical sciences from King’s College London.

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​20 January 2018, Mental Health and Thyroid Disease
At:  Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ 
Storycycler, Jo Clayton, gave a talk about the mental health disturbances she experienced when very unwell with a rare thyroid condition, her journey back to wellness and the lessons she learned along the way. 
This event also included an opportunity to experience a nurturing guided meditation to help calm the mind in times of stress. 

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​​25th November 2017, Patients Voices Winter Warmer event

At:  Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ 
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This event was on the theme of Self Care, with guest speaker Michele Varchione who has hypothyroidism and shared some gentle chair based yoga exercises we could all join in with as well as some great insights on self care. We also enjoyed a very interesting short talk from group member and artist Peter Esslemont, about his journey with thyroid cancer. 

There are some fun photos in the gallery of this meeting.

Michelle teaches mainly in Clapham junction and in Sheen. Let her know you are from The Thyroid Trust if enquiring about classes with  her. 
www.kulawellbeing.co.uk
http://yogahub.london/

You might like to follow Michelle on Instagram.  Her posts are very inspiring.  @ShalaTeacher. 

View this post on Instagram

A post shared by Michelle Varchione (@shalateacher) on Jul 10, 2019 at 10:35pm PDT

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23rd September 2017, 11am - 2pm, London Meeting,  
At:  Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ (see map below)
An Information Event.  Professor Stephen Robinson MA MB BChir, from St Mary's Hospital in London, gave a talk on Thyroid Eye Disease. See report. ​

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8th July 2017, 11am - 2pm, London Meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ. See report.

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3rd June 2017, we walked from Broadstairs to Ramsgate on the east Kent coast, to raise awareness of thyroid disease and have a nice day out together.  See report. 

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​13th May 2017, 11am - 2pm, London meeting, Patients' Voices event, Crown Court Church, Russell Street, Covent Garden, London WC2B 5EZ ​​