THE THYROID TRUST, THYROID FRIENDS
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What people say about us

Lots of people and organisations have said some very kind and heartfelt things to us, about why our work is important to them and why they support us. This new page is to share a few of these comments.  

Gaynor Walker, ​Equality and Health Inequalities Manager,  

​NHS England and NHS Improvement 

​Having had a thyroidectomy i know first hand the need to raise awareness around thyroid gland problems.

The Thyroid Trust work tirelessly to ensure awareness of problems such as goitres, and the impact this can have on the quality of the sufferers life.

​Keep up the good work The Thyroid Trust! We need you! 
Gaynor Walker, Equality and Health Inequalities Manager NHS England

Katie George, MInstF(Cert) volunteer

Katie very kindly volunteered with us, giving us the benefit of her skills and experience as a professional Trusts and Foundations Fundraiser, during the first Covid19 lockdown in 2020. She helped us so much, encouraging and guiding us, suggesting we create this page and share more stories on our website, to help potential supporters understand what we are about and  helping us identify some new potential funding sources and develop new funding proposals, as well as advising us on our fundraising processes, with our long term sustainability in mind. We will forever be grateful to Katie for her wonderful support and now also for this lovely statement. 
​I wanted to help another charity whilst furloughed. I felt it was my duty as I have the skills to help fundraise, was unable to work, and so many charities are needing support more than ever amidst the pandemic. I am a member of a fundraising professionals group on Facebook so I offered help to whoever needed it and Lorraine Williams, Director of The Thyroid Trust, responded first - that is how I began volunteering for this inspiring charity.

​I really enjoyed the experience, the work and vision of the charity is inspiring, Lorraine is a remarkable woman, it made me appreciate just how much can be achieved with a passionate, driven, skilled and brilliant leader and equally passionate volunteers, even with the limitations and struggles of a relatively new, relatively small charity, the undeniable need for what they are doing, and the massive future potential they have.

Kelly Southcott, Kivo Change and co-author of The Future Charities Report

Read about Kelly’s harrowing, life-changing, personal experience with thyroid disease - and  her subsequent impressions of attending a thyroid eye disease conference in Pisa in 2019, as The Thyroid Trust representative. She shares her story on our Thyroid Friends Blog.   
The Thyroid Trust has done so much in such a short space of time, The work you do is badly needed. You are performing like an organisation with an income around £300,000, with an actual income closer to a tenth of that. You need to grow. Get the resources in place to put the organisation on a surer, more sustainable footing so you can continue to deliver and increase your impact. 
Find our more about Kelly and The Future Charities Report on the Kivo website. ​

Ben Lopez, St James's Place Wealth Management

​Thank you very much for the opportunity to sit down with you and learn more about the Thyroid Trust. The subject of ‘thyroids’ is one that I previously had little knowledge of, but our discussion was eye opening and highlighted the need for a greater understanding of the disease. This coupled with your commitment and enthusiasm to assist those suffering inspired me to put The Thyroid Trust forward for a grant from our local St. James’s Place office in Newbury.

​I’m delighted that we were able to help in some small way and look forward to hearing more about the great work you do.

Michelle Varchione, Shala Teacher

Michelle is a London based yoga teacher, who has supported The Thyroid Trust, by running two nurturing self care sessions, since she regained her health.  Read Michelle's story.
​The Thyroid Friends offered reassurance and guidance about how I was feeling and explained about the medication, sending me some information from reliable sources.  Having someone to speak to like this was so valuable!  I was doing all the right things and needed the validation and support which they provided.

​Forever grateful to The Thyroid Trust for supporting me when I felt so lost with my hypothyroidism. 

More quotes from thyroid patients about our work

The following quotes are shared with permission, from people we have helped, some of whom prefer to remain anonymous.  Vroni's poem is also shared here, to illustrate one aspect of thyroid disease and how much our work is needed. 
​“You do such a wonderful job and thank goodness you are there.  Thank you for everything you do.”
anon
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​ "Thank you so much for replying, I know you cam not give medical advice it is just so frustrating that the docs do not seem to be able to help and I know feel like a pain for going   . It really is a disease that should be highlighted and spoken about more often. When first diagnosed the doctors told me that I would start to feel better she actually said 'once you start taking these you will feel like you are on speed' unfortunately I feel no better after a year the doctors have repeated bloods twice and told me that they were acceptable' so following you on Facebook has almost given me a friend. Keep up the good work. We need you!" 
Emma Jury 

It’s a wonderful job that you’re doing to help people!

— Kiara (@Kiaralouise) December 10, 2020

So I couldn't find the wee cartoon so wrote a poem for you instead, trying to describe the state at the time and its consequences. Revisiting this wasn't easy, but it should really make me aware of how far I've come. You guys are amazing by the way with your thyroid support ❤️

— Vroni (@Vroniholzmann) January 6, 2021

A poem about anxieties caused by the thyroid for my friends at @ThyroidTrust □ pic.twitter.com/Jsls2BJp1p

— Vroni (@Vroniholzmann) January 6, 2021
Thank you Gaynor, Katie, Kelly, Ben, Michelle, Emma, Kiara-Louise and Vroni!
​
If you'd like to be quoted here - it can be anonymous - we'd love to hear from you. Please get in touch. 

​We are also collecting Thyroid Stories to help raise awareness and build understanding of thyroid patients' experiences. 

for everyone affected by thyroid disease


Meetings

We organise regular information and support meetings online and in person.
Click here for upcoming dates.    ​

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We are a small independent charity. We receive no government funding and are reliant on donations for our income. Please support us. 

PlEASE CONSIDER SUPPORTING OUR VITAL WORK

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The donate button above takes you to a secure donation processing platform, JustGiving. Please contact us if you would prefer to make a direct bank transfer to donate via any other means, or if you are interested in volunteering. 

Proud members of the following organisations
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Tweets by ThyroidTrust
Thyroid Federation International logo on The Thyroid Trust website
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NCVO logo on The Thyroid Trust website
The Thyroid Trust is a member of National Voices  membership logo
With thanks to all  our supporters, including: 
National Lottery Community Fund logo
Funded By Garfield Weston Foundation

Correspondence ADDRESS

15 Great College Street, London, SW1P 3RX

The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292
Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX
Copyright asserted 2019 - Our consititution and all policy documents can be viewed on request. 
Read our Privacy Policy updated 23/5/18, .
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  • Home
  • About
    • Our Team
    • Annual Report
    • Awareness Videos
    • What people say about us
    • Work for us
  • Events
    • TTT Events Listings
    • International Thyroid Awareness Week 2022
    • Thyroid Cancer Awareness Month
    • Events by other organisations
    • Meeting reports
  • Information
    • Covid-19
    • News >
      • Press Releases
      • Media Coverage
      • MHRA news
      • Women's Health Strategy
      • Funding News >
        • November 2019 Funding News
        • Summer 2020
    • T3 News and Resources >
      • Liothyronine Dossier 2018
      • A GP writes
      • Scottish Parliament
    • Information Videos
    • Expert Insight
    • Research >
      • Research References
    • NICE Guidelines >
      • NICE Guideline Thyroid Cancer
    • Mother Baby Iodine
    • Patient Stories >
      • 24 Questions Videos
      • Michael Rosen
      • Vroni
      • Vicky
      • Karen
      • Michelle
      • Kelly
      • Pamela
      • Helga
      • Mary
      • Submit Your Story
  • Fun stuff
    • Badges
    • Butterfly Art
    • Fondant Thyroids Workshop
    • Gallery
    • Kindness Rocks
    • CAN Affirmation Cards
    • Seaside Walk 2019
  • Blog
  • Contact
    • T3 report form
  • Support Us
    • Fantastic Fundraisers
    • Butterflies Arise!
    • T-Shirts
    • Internet Shoppers
  • Donate