Thyroid Federation International (TFI) and four leading international endocrinologists (Petros Perros- UK, Laszlo Hegedus - Denmark, Enrico Papini - Italy, and Endre Nagy- Hungary) have come together to develop and implement an online questionnaire to understand the needs and experiences of those living with hypothyroidism and, in particular, patients' satisfaction with treatment of hypothyroidism and the identification of any unmet patient needs. (Please see the Research Aims and how to get involved at the bottom of this post).
TFI has agreed to provide input and assistance with recruitment and distribution of the Survey. As TFI members, The Thyroid Trust are supporting this work.
A pilot questionnaire is now available for any patient to complete. This consists now of a Pilot Testing for approximately 300 English speaking patients to ensure that the questions are accurate and easily understood. It should take approximately 30 minutes to complete.
The survey is for all hypothyroid patients, whether their condition is caused by:
We would greatly appreciate if you can take the time participate in this important pilot survey and subsequently in the finalised survey.
The research will seek to explore the following key research questions:
The plan is to keep this pilot survey open for completion over the next 7 weeks. Therefore, the researchers would be looking to close the survey by 3-August 2020. Should they reach the target number of responses before then they may close this pilot survey earlier or if responses are coming in more slowly they may extend it.
This blog is by members of Thyroid Trust Friends Network who have signed up to our Ground Rules and blogging guidelines. Please get in touch if you'd like to write something for possible publication on our site.
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