She was worried. She was in her early fifties and usually very active, being a keen walker and horse rider, but for some time she’d been feeling increasingly tired and had gained weight. It had got to the point where she’d had to plonk herself down on a stile after walking for just a quarter of a mile of a normal three-mile walk. She felt utterly drained - her legs were heavy; walking felt like wading through treacle. This feeling of sheer exhaustion was like nothing she’s experienced before, despite having worked previously as long-haul airline crew for years with the long hours and jet lag.
She explained her symptoms and concerns to a GP who responded with “Well, you are quite overweight, so no wonder you’re tired. Walking at the weight you are will be like carrying a large baby around with you all day”.
And that was it – the advice was just to lose the weight. The woman was mortified – she felt shamed but also angry at the GP’s dismissive attitude and lack of empathy. Of course, she knew she’d gained some weight (it had increased gradually as she approached the menopause) but she couldn’t believe it was just down to this.
A few weeks later, feeling physically and mentally worse, she saw a different GP for a second opinion. This time the experience could not have been more different - he listened to her concerns with compassion and empathy, recognising that she was the best judge of her own sense of “normal” for her body and he requested blood and urine tests. When the tests came back, they showed that her thyroid was under-active, with the GP explaining she’d need to go on medication. The sheer relief at finally being “heard” was enormous and she was reassured by this wonderful GP that she would likely soon be feeling better. Within two weeks, she’d begun to feel the difference and within months was back to her old self.
Why am I telling you this? Because that woman was me and I am really concerned about the shaming element of my experience of trying to get a diagnosis – I now know (from information from The Thyroid Trust and social media) that my experience isn’t uncommon and as a mental health professional (I’m a counsellor) I’m hugely concerned of the negative impact that shaming may have on others seeking a diagnosis. How many people might have accepted the first doctor’s view and blamed themselves for their weight gain, feeling too awful to insist on a second opinion? For me, I’m a few years down the line now and, with the correct diagnosis and medication, I’m fit and back to walking miles again.
Even in difficult times like these, seeing your GP should be a positive experience and a collaborative exchange of information to assess what’s going on for you. If you haven’t yet had a diagnosis (or you’re concerned about treatment) here are some tips which you might find helpful:
This blog is by members of Thyroid Trust Friends Network who have signed up to our Ground Rules and blogging guidelines. Please get in touch if you'd like to write something for possible publication on our site.
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