The Thyroid Trust and our friends at Thyroid UK are cosignatories to an important statement by the voluntary sector that has been issued this morning calling for a more sophisticated and meaningful debate on health in the UK
The statement sets out the need to broaden the debate on health and recognise the importance of communities. We are thrilled that 61 charities and social enterprises are making this call together.
It has been published on Medium this morning https://medium.com/…/the-nhs-is-essential-but-good-health-d….
PoliticsHome have covered the story https://www.politicshome.com/…/excl-top-health-charities-wa…
We are using the hashtag #MoreToHealth to amplify the statement. The key messages are:
The NHS is essential, but good health is about so much more.
Health is made good or bad within the neighbourhoods and communities we live.
Life expectancy gains have stalled, and we are living more years in bad health.
1) Health in all policies,
2) Collaboration across parties and departments,
3) Time for domestic policy agendas, including public health,
4) Urgent investment into communities,
5) A comprehensive settlement for social care
If you support the statement please share using the hashtag #MoreToHealth. Let's make as much noise as possible to support the voice of the voluntary sector in calling for a more sophisticated and meaningful health debate in the UK. Thank you so much if you can support this activity.
Leading clinicians from across the world are coming together for a Joint Symposium on evidence based use of T3+T4 combinations for treating hypothyroidism.
The event will take place on Sunday 3rd November 2019, in both London and Chicago, with participants in both locations sharing information and debate.
It has been jointly organised by the American Thyroid Association® (ATA®), the British Thyroid Association (BTA) and the European Thyroid Association (ETA).
The Thyroid Trust is a member of Thyroid Cancer Alliance which gives us access to WECAN, the Workgroup of European Cancer Patient Advocacy Networks. Earlier this year we were fortunate to be able to send a representative to the WECAN Academy in Frankfurt. You can read our report of the course, on an earlier blog post, here.
WECAN is now planning its first WECAN Science Academy in early 2020 with three aims:
Have you thought of asking your employer, or other companies you may have connections with, if they might be able to support The Thyroid Trust?
Lots of companies are keen to support charities and they are often all the more keen if a staff member or customer suggests it to them.
We have been incredibly fortunate to be offered use of meeting room space by Transport for London,
The Thyroid Trust is for people affected by all thyroid disorders, which includes thyroid cancers.
Our Director, Lorraine Williams, attended the first WECAN Academy, 6th-9th July 2019 in Frankfurt, along with our Chair of Trustees, Judith Taylor, who is also Secretary and Director to Thyroid Cancer Alliance and a member of the WECAN organising committee. Lorraine was sponsored by the umbrella organisation, Thyroid Cancer Alliance, which we are members of.
World Thyroid Day is May 25th, and International Thyroid Awareness Week is
May 25th to 31st, 2019.
l-r Chery and Juila from British Thyroid Foundation, Professor Chatterjee from British Thyroid Association, Tracey from ITT and Norfolk Support Group, Jim from Midlands Thyroid Support Group, Judith from The Thyroid Trust and Thyroid Cancer Alliance, Tara from ITT and Norfolk Support Group, Lorraine from The Thyroid Trust, Amanda from TPA, Lyn from Thyroid UK and Kath from Midlands Thyroid Support Group
Exciting news about a new innovative partnership we are helping develop that we believe may be game changing for thyroid patients in the UK.
Our May Patients Voices event is now just over two weeks away and we are very excited about it! This meeting is for anyone affected by a thyroid disorder. Friends, family and interested professionals are welcome too.
Do you keep notes about your thyroid condition and share them with your doctor? Do you keep a note of your blood test results if you are given them? Do you track specific symptoms? Do you note how much you exercise, your stress levels or what you eat? Do you make a note when you take your medication? Do you have a system for keeping track of how things may change over time?
How useful have you found any notes or data you keep in helping you to manage your condition with your doctor's support? What things are important to YOU to keep a note of and what has proven to be most helpful for you and / or your doctor.
Dear friends. This is our first blog post! Thanks for reading.....
We hope you're well and wanted to remind you of our March event details so you can book if you are intending to come, if you haven't already - AND - to share details of two very exciting speakers we have now confirmed for later in the year.
This blog is by members of Thyroid Trust Friends Network who have signed up to our Ground Rules and blogging guidelines. Please get in touch if you'd like to write something for possible publication on our site.