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Big pharma, the NHS, thyroid disease and me

16/5/2023

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Article shared and written by Judy Copage

Judy Copage, Co-editor -in -chief of Central Bylines.  lives in Shrewsbury and spends her time walking on the Shropshire hills, discovering hillforts, attempting to learn photography, and occasionally writing and editing. She worked as a teacher of English as a foreign language and teacher trainer in Portugal, the United Arab Emirates, Malaysia and Greece for 20 years. Back in the UK, she was a Senior Lecturer in Linguistics at the University of Wolverhampton. She is Director of Copage Educational Services.

​This is a personal account telling the story of a battle with the NHS to get treatment for thyroid disease. Article originally published on Central Bylines at: https://centralbylines.co.uk/big-pharma-the-nhs-thyroid-disease-and-me/ 


​For many years, after a diagnosis of autoimmune hypothyroidism (Hashimoto’s disease), I struggled with the medication I was given. I had no idea that what lay ahead of me was seven years of fighting for an alternative.

Thyroid basic facts
Your thyroid gland is in the neck. It straddles the trachea, just below the larynx. Until I became ill, I had no idea what it was and how it regulates the chemistry of the whole body. If it goes wrong, you can be affected in many different ways.
It produces two hormones, thyroxine (T4) and triiodothyronine (T3). The balance of both is controlled by another hormone, TSH, which is sent from the pituitary gland to the thyroid.

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Things may be tough, but you are tougher!

12/4/2023

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Written by Louise Sellar, Director, Thyroid Trust
​
This was my mantra as I battled with distressing symptoms during a global pandemic lockdown. I first started suffering symptoms during the first lockdown of the coronavirus pandemic in 2020.

The first symptom I noticed was that my heart was racing at rest and I started to feel very anxious. I then started to have hot flushes and night sweats and difficulty sleeping.  I contacted my GP surgery , who were only offering telephone consultations at this stage of the pandemic. Due to early menopause running in my family and as I was just about to turn 40, they suspected that might be the cause and gave me lots of helpful tips and advice. However, things just kept getting worse and one morning I contacted 111 as I had woken early with an extremely fast heart rate, I was advised to go to A and E where upon having bloods taken, to check that I hadn't had a heart attack, the doctor advised me that I was suffering with anxiety due to the stress of being in lockdown.


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Kamal Mandalia’s Talk on Papillary Thyroid Cancer

31/7/2022

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Written by Sherina Mandalia
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Kamal Mandalia gave a talk at one of our Thyroid Trust Awareness events this May. During the event he spoke about his journey of having Papillary Thyroid Cancer.  

Kamal’s journey started in 2018. While coming back from holiday he noticed something didn’t feel right, of course at that time you don’t jump to the conclusion of cancer so he just thought it was simply dehydration. However he went to his GP just to be sure and had a blood test and urine test. At that time all tests came back fine - it is important to note that he did not experience any thyroid related symptoms.


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Mental Health, A Medical Conference And A Hopeful Future

19/2/2020

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One foot in the Graves’

Imagine waking up one day to realise you no longer recognise yourself in the mirror, your relationships are falling apart, you feel strange pains throughout your body and you feel a deep, heavy emptiness in your chest that nothing will shift.

​If you’re someone who has thyroid eye disease, you’ll know exactly what I mean. If you’re someone that knows someone that’s had it, you might know what I mean, but if you’re neither, the chances are you won’t. 

And that’s understandable, as it’s a rare disease. 

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    Thyroid Friends

    This blog is by members of Thyroid Trust Friends Network who have signed up to our Ground Rules and blogging guidelines. Please get in touch if you'd like to write something for possible publication on our site. 

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The Thyroid Trust is also known as TTT and Thyroid Friends Network,
Registered Charity Number 1183292
Registered Address: 15 GREAT COLLEGE STREET, LONDON, SW1P 3RX
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  • Home
  • About
    • Our Team
    • Annual Report
    • Awareness Videos
    • What people say about us
    • Work for us
  • Events
    • TTT Events Listings
    • International Thyroid Awareness Week 2022
    • Thyroid Cancer Awareness Month
    • Events by other organisations
    • Meeting reports
  • Information
    • Fitness & Wellbeing Q&A
    • Covid-19
    • News >
      • Press Releases
      • Media Coverage
      • MHRA news
      • Women's Health Strategy
      • Funding News >
        • November 2019 Funding News
        • Summer 2020
    • T3 News and Resources >
      • Liothyronine Dossier 2018
      • A GP writes
      • Scottish Parliament
    • Information Videos
    • Expert Insight
    • Research >
      • Research Participation
      • Research References
    • NICE Guidelines >
      • NICE Guideline Thyroid Cancer
    • Mother Baby Iodine
    • Patient Stories >
      • 24 Questions Videos
      • Michael Rosen
      • Vroni
      • Vicky
      • Karen
      • Michelle
      • Kelly
      • Pamela
      • Helga
      • Mary
      • Submit Your Story
  • Fun stuff
    • Badges
    • Butterfly Art
    • Fondant Thyroids Workshop
    • Gallery
    • Kindness Rocks
    • CAN Affirmation Cards
    • Seaside Walk 2019
  • Blog
  • Contact
    • T3 report form
  • Support Us
    • Corporate Fundraising Pack
    • Fantastic Fundraisers
    • Butterflies Arise!
    • T-Shirts
    • Internet Shoppers
  • Donate
  • Graves Disease - Resource List
  • Link Page