The Thyroid Trust is a member of Thyroid Cancer Alliance which gives us access to WECAN, the Workgroup of European Cancer Patient Advocacy Networks. Earlier this year we were fortunate to be able to send a representative to the WECAN Academy in Frankfurt. You can read our report of the course, on an earlier blog post, here.
WECAN is now planning its first WECAN Science Academy in early 2020 with three aims:
- science education for cancer patient advocates
- identification of scientific 'edge' areas that will drive much-needed progress for cancer patients
- develop concepts on how patients can effectively engage in research projects.
If this is of interest to you, you can help shape these discussions.
Please follow the link below and answer three questions about science research trends and needs in thyroid cancer. WECAN need your insights to make sure that the scientific programme covers the needs for as many thyroid cancer patients as possible - as well as the wider cancer patient community - so thank you for taking the time to think and fill this in!
WECAN will collect email addresses to be able to get back to you for clarification, should that be required, The data will otherwise only be held for the purpose of WECAN Science.
WECAN need as many answers as possible from patients and patient advocates in different countries so it would be appreciated if you would circulate the link to anyone else you know who fits that criteria and may like to participate. Please note, at the moment WECAN is only interested in views of patients/patient advocates. There will be a separate initiative to get input from clinicians.
If you have any questions – please get in touch, or comment below.
With Thanks to Thyroid Cancer Alliance and our Chairperson, Judith Taylor, for sharing this opportunity.
This blog is by members of Thyroid Trust Friends Network who have signed up to our Ground Rules and blogging guidelines. Please get in touch if you'd like to write something for possible publication on our site.